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Parsonage turner syndrome *
I was diagnosed with parsonage turner last November after 2 months of agony, while I am able to function now, I'm still experiencing severe weakness, numbness, pain, this is unusual im told, but having it as a woman is unusual also. Does anyone have any experience with this?
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Hi @kel2, @becsbuddy gave you some good resources to get started on finding a Parsonage Turner Syndrome specialist. I moved your message to this existing discussion group:
- Parsonage turner syndrome * https://connect.mayoclinic.org/discussion/parsonage-turner-syndrome/
I did this so you can more easily connect with fellow PTS members like @macker4635 @stacy88 @jjspokane61 @patrick17 @andylevine @kgoodwin9 @jjspokane61 @macker4635 @smf @scionmissy, share experiences and get tips on finding a good specialist.
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2 ReactionsHello, How are you doing? I too have PTS. My first symptom was intermittent pain/sensitivity to the tip of my index finger. Eventually I loss function of the upper part of fingertip for several months. Prior to losing function I experienced intermittent spasmodic pain to upper arm and intermittent pain near scapula. My EMG and conduction studies were negative. My MRI of cervical neck shows stenosis but well respected neurosurgeon said I don't need surgery at this time. I also have osteoarthritis in both thumbs and will have surgery for that soon. I get occasional spasms in index finger with pain along tendon up into forearm after these. This all started about 4 years ago.
I’m 65 WM right-handed. Looking back my PTS started on Jun 7th of 2023, pain in neck at 5pm, left scapula at 9pm and moved to left elbow by 12am. I had two recent surgeries with a lot of mental and physical stress. Through the spring I had very mild sore throat/congestion. On 6/13 I had trouble drinking with my left hand, clumsy. 6/18 numbness in left thumb and pins and needles on back of left hand. 6/19 much worse, wrist limp. June 30th had EMG and I was misdiagnosed with radial nerve palsy, aka Saturday Night Palsy. 8/6 pushed off with left arm and had shooting pain, then left thumb went numb. 8/29 EMG diagnosed with PTS. 9/9 After working hard in the yard I did have a mild momentary nerve pain shoot down my left leg when I stood up and multiple times since but much milder. 9/18 started Gluten Free, Alcohol Free, Dairy Free diet as PTS has an autoimmune component. Your comments are welcomed.
Yes I’ve still got numbness in right hand little finger and next finger after 7 mths
Started with shoulders(both) being painfull overnight around 5 days after right hip replacement. Moreso on the right shoulder
Lasted for about 2-3 mths
Still can’t lift right arm to full extent after 7 mths
Have you had any improvement? After 4 months I have some improvement in my shoulder and only slight improvement in my hand.
That was my 7 month update
Little finger and half of the ring finger still numb
Left shoulder 90%good
Right shoulder 70%
Now having left hip replaced end November
Hope i dont get it twice
What happens when Parsonage Turner syndrome isn’t treated? I’ve had symptoms for almost 7 months and I literally feel like I’m shutting down. The pain is so intense, I can barely sleep and when I wake up my arms don’t work at first. I’ve been to numerous doctors and emergency rooms and sent home w no answers.