Mayo Clinic Connect
To those that suffer from abnormal sensation, what helps to relieve the sensations? What have you tried? What has helped or worsened your symptoms?
Liked by John, Volunteer Mentor, Chris Trout, Volunteer Mentor
Is the gabapentin meant to treat your pain? I actually started it for quite severe twitching in my legs at night, but I've found that it helps to relieve some of the spasticity in my feet and the strange sensations in my legs. I do not take it during the day. Just a dose at night. It however is not a cure all…
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@beth11, Gabapentin is a seizure medication that is used to treat the pain symptoms of neuropathy. You are correct, it does nothing to help the condition of neuropathy.
Liked by Chris Trout, Volunteer Mentor
I never realized how critical feet health is to general health until the symptoms in my feet started getting worse. My legs have really lost a lot of strength. The PT suggested that I see a foot surgeon to consider surgery to release the spasticity in my toes. It seems a scary proposition…
@beth11 Yes, foot health is imperative. Amazing, how much I have found that out. As far as acupuncture, it did nothing for me at all. Nor did cold laser help me. Only things that help are marijuana, cbd oil, and Kratom. Not a good way to live, though. I am getting used to the feel of marijuana, and it does help a lot. Just not a way to live a normal life….
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I agree with you Lori Renee…not normal. I can't use it during the day because I hate the way it makes me feel. Bedtime only. Tried and tried again, when I'm desperate for help but all in all, just not for me. Currently I'm trying to manage my body as best I can and sticking with hydro, heat and rest. Sucky way to live. I am trapped in my body and my mind wants to live as normal.
Beth, I was prescribed gabapentin for my SFN and it relieves the leg twitches and burning pain in my feet and hands and actually puts me to sleep within 2 hrs. of taking it. I only take it at night and have increased the dose 2x in 2 yrs. while maintaining a low dose. My pain during the day us minimal so I choose not to take it because I am leery of becoming intolerant. I also take R-Alpha Lipoic acid 2xday which I believe helps me with the pain besides other vitamins. Have you tried a muscle relaxant for the spasticity? Surgery is usually a last resort in my opinion.
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Has anyone tried acupuncture? @helennicola @grammlyn @lorirenee1
I tried acupuncture on my hands with no success. I should add that I have had success in the past for other pain issues but I only went once for a 2 hr. appt. with a well respected acupuncturist but had no relief at all and so I felt the cost was not worth the effort to try again.
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@rwinney Rachel, I can no longer be without marijuana or Kratom. I do not even know if it's purely physical, or has become partly emotional/mental from becoming utterly worn out from dealing with pain. I know I have to have that stuff, and it is scarey to me. Have I become addicted? Does it matter? Is marijuana really safe? But without it, the pain can be like child birth, maybe worse. So what am I to do? The whole thing sucks. Marijuana is not the answer to pain. Like you said so perfectly, we are trapped in our bodies, but our minds want to live as normal. We want to just fly free of sickness. It is becoming that I feel more normal, more like my natural, healthy self when I have marijuana in me. The me without it is in a constant struggle, with the beast of pain winning the battle. I feel our vitality. I feel our illness. Sometimes I hate feeling….Lori
@lorirenee1 I'm so glad you are finding relief by any means you feel right about. It's the most important part for your soul.
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My view on marijuana is that there are now numerous scientific studies (done by the NIH and others) investigating the effectiveness and safety of medical marijuana in a variety of diseases and conditions including neurological disorders. There is no reason to view it differently than other methods of treating illness.
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@beth11 It helps to hear what people think of marijuana on a moral level, at least for me. It may be this is my life now! forever! The only way for me to have a "normal" life is to alter it a bit with marijuana. It is a very hard adjustment for my brain to make, I almost fault myself. Crazy. But it is very good to just think of it as a medicine. Lori R.
Liked by John, Volunteer Mentor, Chris Trout, Volunteer Mentor, beth11
Marijuana is medicine and has helped many people with myriad medical issues. Back in the early 1980s and 1990s I worked with people with AIDS and it helped to relieve their pain. Now I use medical marijuana to attenuate my pain and it helps me to sleep at night. It should be decriminalized in all 50 states.
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