1. < Diabetes & Endocrine System

Do I have Pancreatitis?

Posted by harper7745 @harper7745, Jul 27, 2019

Have had CT abdomen, it showed possible mild pancreatitis. MRI showed possible mild pancreatitis, EUS showed chronic pancreatitis. Amylase 34. Lipase 104, 149 and 69. No symptoms of pancreatitis. Have pancreatic divisium and been on Omneprazole for 16 years. Do I have pancretitis.?

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harper7745 | @harper7745 | Aug 8, 2019
In reply to @hopeful33250 "Hello @harper7745, I'm glad that you posted about your Aug. 1st appointment. It sounds like your..." + (show)
@hopeful33250

Hello @harper7745, I'm glad that you posted about your Aug. 1st appointment. It sounds like your diagnosis of pancreatitis is still somewhat of a mystery. I hope that you get a good report after your next MRI. I look forward to hearing about the results.

In the meantime, I saw an article about pancreas divisum which you mentioned in your post. I did find this on the pancreas foundation website. You might look at this article as well as other information provided on the pancreas foundation website.
https://pancreasfoundation.org/patient-information/ailments-pancreas/pancreas-divisum/
Will you post again after your next MRI?

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Thank you for your website on pancreas divisium. I will keep you posted after the next MRI. I am worried right now about becoming a diabetic if indeed it's pancreatitis. My doctor doesn't want to do any blood sugar testing right now? My last blood sugar the end of March was 99 fasting and 124 non fasting, so as of then I was o.k.

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 8, 2019
In reply to @harper7745 "Went to specialist Aug. 1st. He put me on steroids for 2 weeks and wants a..." + (show)
@harper7745

Went to specialist Aug. 1st. He put me on steroids for 2 weeks and wants a repeat MRI in 3 weeks. He said I have pancreatitis but not sure why. Don't drink enough alcohol. Possibly pancreas divisium, genetics, auto immune, or being on Omenprazole for 16 years?
I will keep you posted!

Jump to this post

Hello @harper7745, I'm glad that you posted about your Aug. 1st appointment. It sounds like your diagnosis of pancreatitis is still somewhat of a mystery. I hope that you get a good report after your next MRI. I look forward to hearing about the results.

In the meantime, I saw an article about pancreas divisum which you mentioned in your post. I did find this on the pancreas foundation website. You might look at this article as well as other information provided on the pancreas foundation website.
https://pancreasfoundation.org/patient-information/ailments-pancreas/pancreas-divisum/
Will you post again after your next MRI?

REPLY
1 reply
harper7745 | @harper7745 | Aug 8, 2019
In reply to @mirkofit "He’s leaning towards me having Congenital Sucrase-Isomaltase Deficiency (CSID) . its a rare disorder that affects..." + (show)
@mirkofit

He’s leaning towards me having Congenital Sucrase-Isomaltase Deficiency (CSID) . its a rare disorder that affects a person's ability to digest certain sugars due to absent or low levels of two digestive enzymes, sucrase and isomaltase. Sucrase and isomaltase are involved in the digestion of sugar and starch. Seems a little Far-fetched to me . Considering I’ve never had issues before . But then again I guess things can happen and change . But I will ask him about other tests and suggest other things . I’m a veterinarian technician for 8 years now and I’ve done and seen a lot of things . This would never happen in vet medicine , would not take this long to figure out what is wrong . If an animal came into my clinic with my like symptoms, we would lead towards liver or pancreatic issues .

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Does sound strange, but maybe your body has changed. I agree with you. With all of your symptoms, I would have said pancreas or liver issues. Good luck and keep me posted.

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harper7745 | @harper7745 | Aug 8, 2019
In reply to @claytamos "But if your pancreatic enzymes are elevated it will show in your blood work not a..." + (show)
@claytamos

But if your pancreatic enzymes are elevated it will show in your blood work not a MRI or CT. I've had pancreatitis attacks where my lipase is through the roof and my CT scan appears normal. A MRI or other scan cannot measure your lipase or amylase.

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My Lipase x3 was 109, 149 and then 69. My amylase was good. My CT showed acute pancreatitis and MRI showed acute pancreatitis. My EUS showed head of pancreas enlarged. Biopsy taken and came back no cancer, benign background with atypical cells which doc wasn't worried about. They classified me as chronic pancreatitis. I find it hard to believe as I don't have any symptoms of it.

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claytamos | @claytamos | Aug 8, 2019
In reply to @harper7745 "I was told by a doctor that if your pancreatic enzymes were not working, there is..." + (show)
@harper7745

I was told by a doctor that if your pancreatic enzymes were not working, there is a problem with the pancreas

Jump to this post

But if your pancreatic enzymes are elevated it will show in your blood work not a MRI or CT. I've had pancreatitis attacks where my lipase is through the roof and my CT scan appears normal. A MRI or other scan cannot measure your lipase or amylase.

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1 reply
harper7745 | @harper7745 | Aug 7, 2019
In reply to @destructiveforc "I don't have gallstones, or sludge or polyps in my gallbladder according to the doctor today...." + (show)
@destructiveforc

I don't have gallstones, or sludge or polyps in my gallbladder according to the doctor today. Specialist in radiology.

My main problem is floating stool, feeling sick after eating with occasional pain. I am kind of afraid of eating to be honest. All doctors told it is not pancreatitis, but I might have a problem with pancreas enzymes due to greasy stool.

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I was told by a doctor that if your pancreatic enzymes were not working, there is a problem with the pancreas

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1 reply
mirkofit | @mirkofit | Aug 3, 2019
In reply to @claytamos "Have you tried taking digestive enzymes?" + (show)
@claytamos

Have you tried taking digestive enzymes?

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Yes I have . Since I competed in fitness . I would take things like that. Didn’t seem to help at all . Unfortunately

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claytamos | @claytamos | Aug 3, 2019
In reply to @mirkofit "He’s leaning towards me having Congenital Sucrase-Isomaltase Deficiency (CSID) . its a rare disorder that affects..." + (show)
@mirkofit

He’s leaning towards me having Congenital Sucrase-Isomaltase Deficiency (CSID) . its a rare disorder that affects a person's ability to digest certain sugars due to absent or low levels of two digestive enzymes, sucrase and isomaltase. Sucrase and isomaltase are involved in the digestion of sugar and starch. Seems a little Far-fetched to me . Considering I’ve never had issues before . But then again I guess things can happen and change . But I will ask him about other tests and suggest other things . I’m a veterinarian technician for 8 years now and I’ve done and seen a lot of things . This would never happen in vet medicine , would not take this long to figure out what is wrong . If an animal came into my clinic with my like symptoms, we would lead towards liver or pancreatic issues .

Jump to this post

Have you tried taking digestive enzymes?

REPLY
1 reply
claytamos | @claytamos | Aug 3, 2019
In reply to @mirkofit "This is my 3rd GI doctor in 1 year . The one I have currently seems..." + (show)
@mirkofit

This is my 3rd GI doctor in 1 year . The one I have currently seems to actually kinda of are to figure something out . But will do a test , have me wait for 3 weeks to see him for results then do another test wait 3 weeks for results . So I’m basically seeing him once a month for him to just say “looks fine , next .” They other 2 would just tell me “ oh I’m gong to say it’s probably IBS . Which I know it’s not . Something is wrong and it’s very frustrating being so malnutrition and dehydrated all the time .

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I had a similar situation. Doctors kept telling me it was IBS. I finally found a doctor that figured things out. Keep with it, do your research, and you'll find the answer.

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