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Hi. My husband was recently diagnosed with Pancreatitis.
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Is this just a CT Scan done with contrast dye or something altogether different? If I have had one, it was not called that.
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@gman007 No, this is more sophisticated than a CT scan or an MRI and is used to find NETs. Here is the link to take you to the explanation: https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/
As NETs are difficult to find with traditional CT or MRI technology – this scan will find even very small NET cells. Teresa
@tnabs2008, Welcome to Connect. my husband had a real painful episode of pancreatitis in October. It was painful for him and frightening for both of us.
How is your husband doing?
Thanks Gary for your feed back. I am going to talk to the drs about the antioxidants.
@tnabs2008, Is your husband making any progress? What are his doctors saying?
Sending continued thoughts and prayers to the both of you,
After posting my response, I did go and do some research and it sounds like a much more effective locator of NET’s than a simple CT scan. My tumor that required the removal of much of my pancreas was not seen on a recent scan and was found by doctors who were going in endoscpically for a celiac plexus block and found the tumor once inside. I would appreciate the more precise findings of the 68gallium scan
@gman007 I understand – my NETs were also found endoscopically. Perhaps you should talk with your doctor/oncologist regarding the 68Gallium scan. There is one center in my state that has this diagnostic tool and as you can see from my post above, Mayo Clinic in Minnesota also has it available for NET patients. Teresa
There are three in NC and I live in upstate SC, so I could get to a center without too much trouble and will mention that to my GI in October. Thanks for the heads up.
@gman007 Sounds like a good plan! Let us know how it works out for you. Teresa
Hi, @tnabs2008 — thinking of you here at Mayo Clinic Connect and what you had talked about with your husband and his pancreatitis. Wondering how he is doing?
Welcome to Connect, @tnabs2008.
I hope you don’t mind, but I moved your messages into the endocrine group, where it's well-suited and you can connect with others who've had pancreatitis or are caring for those with pancreatitis.
I’m tagging fellow members @twinskl @freemary @gman007 and @rosemarya, all of whom have experience with acute or chronic pancreatitis. I hope they will share their experiences.
@tnabs2008, do you know what caused his pancreatitis? How is he doing?
I am new to group and also pleased to hear of others experiences and coping ideas. I have had five episodes of pancreatitis in five years. After the last one my doctors ordered some gene testing….I have no gall bladder….the tests revealed I have a mutant gene for Cystic Fibrosis and that perhaps the mucus is causing the pancreas issues. I am now on enzymes and am happy to report that many of my digestive issues are decidedly improved.
I am pleased to hear that your digestive issues are so improved. I was wondering if you could share with us about the enzymes you are taking. Are they prescription enzymes or an over the counter product? Also, were there any other dietary modifications that you made?
I look forward to hearing from you again – it is amazing how much we learn from each other!
Wanted to add my welcome to Mayo Clinic Connect, @jensfcv. Very interesting about the gene testing your doctor ordered as you dealt with your five episodes of pancreatitis. Glad to know many of your digestive issues are improved after going on enzymes.
I also wanted to connect you and others in this discussion with @kdo0827, @elbb29, @kduran23, @mbbarrett, @dolo, @sneege, @amwein and @tnabs2008, all of whom have discussed acute or chronic pancreatitis, as well as @kdubois and @vdouglas, who may have some insights to share.
Do you have any tips on coping with pancreatitis episodes, @jensfcv?
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