1. < Neuroendocrine Tumors (NETs)

Pancreatic neuroendocrine insulinoma

Posted by links @links, Jan 19, 2023

Looking to connect with anyone who has an insulinoma. My tumor presents in the pancrease. I currently have chemotherapy bi weekly since July 2022. This is a rare combination and have struggled with regulating my sugars and hoping to meet someone else with a similar diagnosis.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

htam4 | @htam4 | Jun 18 10:55pm

Hi I really need more feedback from this whipple surgery?

I gained a lot of weight... But I still could eat , walk , work 😞 I don't know if I could still do this after this surgery ...

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pavlina60 | @pavlina60 | Jun 19 8:54am
In reply to @htam4 "Hi I really need more feedback from this whipple surgery? I gained a lot of weight......" + (show)
@htam4

Hi I really need more feedback from this whipple surgery?

I gained a lot of weight... But I still could eat , walk , work 😞 I don't know if I could still do this after this surgery ...

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@htam4- I live in Syracuse, NY. We have a very good Cancer center and I had my surgery there in February 2023. The surgeon who did mine , Dr.Dhir is a very good doctor, with NET experience and now he also does robotic Whipple procedures! I was not a candidate since my tumor was large (16×20 cm) and I also had endometrial cancer.
Look him up! Dr.Mashaal Dhir.
Good luck! And do not wait for your tumour to grow! You are lucky they found him so small!

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