Pancreatic MCN cyst - head of pancreas

Posted by leesal @leesal, 2 days ago

I was recently diagnosed with a MCN head of pancreas cyst (just under 4 cm) in April via EUS after ER visit for abdominal pain. It was infected. Mild enhancement of wall of septa no duct dilation. CEA 6470 ng/ml.
I have had increased symptoms of feeling full immediately and sick after eating, nausea off and on all day and adominal pain radiating to back. I went in with complaints and saw the nurse who said these symptoms are not from the cyst (tsked at me) and ordered a GI emptying test which I am waiting for before going to Jacksonville for a second opinion. Have been told to get a repeat MRI in a year.
I am curious if anyone has had this rare cyst (head of pancreas) with symptoms and their experience.

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jnowling | @jnowling | 2 days ago

Did they take a biopsy? If you're close to Jacksonville get evaluated at the Mayo Clinic ASAP.

leesal | @leesal | 2 days ago

Yes, it was negative. Thank you.

tstern7 | @tstern7 | 1 day ago

Can you have it removed? I would ASAP

tstern7 | @tstern7 | 1 day ago

If it’s getting infected, etc, get it removed. Even if not malignant, it’s in a bad spot.

jnowling | @jnowling | 1 day ago

In reply to @leesal "Yes, it was negative. Thank you." + (show)

My first biopsy was negative also, but my Oncologist suspected otherwise and ordered a second which was positive.

leesal | @leesal | 1 day ago

Good to know! I’m so glad for this forum.

leesal | @leesal | 1 day ago

In reply to @tstern7 "Can you have it removed? I would ASAP" + (show)

I’m going to go to Jacksonville to get a second opinion.

2callahan | @2callahan | 1 day ago

My first biopsy was negative. Also got a second opinion at Mayo Arizona came back positive.Run don't walk for your second opinion wish I hadn't wasted so much time.