1. < Pancreatic Cancer

Pancreatic Cancer Recurrence after Whipple

Posted by joannc63 @joannc63, Feb 18, 2023

Hello. I had the Whipple surgery on 6/30/2020 for stage 3 Pancreatic cancer. I found out on 2/17/23 via CT scans that it is back in the pancreatitis bed and a noldule in my liver. I see my oncologist in 2 days to go over starting chemo again. I have back pain and abdominal pain from the recurrence. Has anyone had luck with chemo when the cancer returns? I hope the oncologist can get the tumor to shrink. I guess I am just looking for hope maybe this can get under control. Thank you.

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pete1962 | @pete1962 | Aug 20, 2023

SSA = somatostatin analogues
In the UK the MDT (multidisciplinary teams) have a max of 6 weeks to review CT scans. There are two main issues: a CT scan is not as clear as a PET scan but less stress on the body. This makes it more difficult to assess any progress. The second issue is that this last scan is more seen as a benchmark scan and regression of the Tumor is apparently not expected. Will get the results coming Wednesday, fingers crossed.

REPLY
1 reply
stageivsurvivor | @stageivsurvivor | Aug 20, 2023
In reply to @gamaryanne "Peter, what is an SSA injection? I am surprised a CT scan in June would not..." + (show)
@gamaryanne

Peter, what is an SSA injection?
I am surprised a CT scan in June would not return results in over a month. I hope it’s back by now and the results are positive!

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SSA= Somatostatin Analog used for treating Neuroendocrine tumors.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 20, 2023
In reply to @gamaryanne "Peter, what is an SSA injection? I am surprised a CT scan in June would not..." + (show)
@gamaryanne

Peter, what is an SSA injection?
I am surprised a CT scan in June would not return results in over a month. I hope it’s back by now and the results are positive!

Jump to this post

Hi @gamaryanne

I see that @stageivsurvivor has given you some information on SSA injections.

Here is a link to specific information. As you can see, it is used to treat neuroendocrine tumors (NETs).

https://www.cancerresearchuk.org/about-cancer/neuroendocrine-tumours-nets/treatment/somatostatin-analogues/what-are
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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 21, 2023
In reply to @pete1962 "SSA = somatostatin analogues In the UK the MDT (multidisciplinary teams) have a max of 6..." + (show)
@pete1962

SSA = somatostatin analogues
In the UK the MDT (multidisciplinary teams) have a max of 6 weeks to review CT scans. There are two main issues: a CT scan is not as clear as a PET scan but less stress on the body. This makes it more difficult to assess any progress. The second issue is that this last scan is more seen as a benchmark scan and regression of the Tumor is apparently not expected. Will get the results coming Wednesday, fingers crossed.

Jump to this post

@pete1962,

I hope that the results that you get on Wednesday will provide you with good results and a treatment plan going forward.

Will you post an update as it's convenient for you?

REPLY
pete1962 | @pete1962 | Aug 29, 2023

Hi

I finally got my first result since I am on Landerotide. The comparison was between a CT scan that I had in Dec 2022 vs. one in June 2023. I have been on Landerotide since March.

It appears that my tumors have shrunk a little bit which is obviously great news. I did not expect this result since according to my specialist it is very common that the first scan after treatment starts might even show a growth of the cells. I will have my next result probably early December and hopefully the progress continuous....fingers crossed.

Keep your spirit up, there is a lot of possibilities out there to treat NET and NELM.

REPLY
1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 29, 2023
In reply to @pete1962 "Hi I finally got my first result since I am on Landerotide. The comparison was between..." + (show)
@pete1962

Hi

I finally got my first result since I am on Landerotide. The comparison was between a CT scan that I had in Dec 2022 vs. one in June 2023. I have been on Landerotide since March.

It appears that my tumors have shrunk a little bit which is obviously great news. I did not expect this result since according to my specialist it is very common that the first scan after treatment starts might even show a growth of the cells. I will have my next result probably early December and hopefully the progress continuous....fingers crossed.

Keep your spirit up, there is a lot of possibilities out there to treat NET and NELM.

Jump to this post

Hello @pete1962

I'm so pleased, as I am sure you are, for your good results! I appreciate you posting this encouraging news. It certainly helps all of us with NETs to know that there are treatments that help.

I look forward to hearing from you again!

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