Pancreatic Cancer Recurrence after Whipple

How are you doing now Joanne? What treatments are you on?

The trial I am starting April 30th is Multiple Cohort Trial of ALTA3263 for patients with advanced solid Tumors with KRAS mutations

Please share which trial you will be on. Thank you!!

Had 6 treatment of the Gemcitabine and Paclitaxel had my CT scan they found new spots on my liver. Went and seen the clinical trial Doctor he said to stop that treatment and go back on the 5fu and all the other ones you get with the 5fu. Had 1 treatment and the clinical trial Doctor said I could not do anymore if I was going to do the clinical trial Had another liver biopsy on April 17th and I go tomorrow for more testing and I start the clinical trial on April 30th. I was so happy that I got accepted into the trial. The trial just came out in March so it's a brand new trial. Hopefully it works and I can help other people by doing this trial.

@joannc63 How did your treatment go? Did you get chemo/radiation for your reoccurence?

Thanks!

Just was wondering if anyone cancer is adenocarcinoma this is the type I had in my pancreas stage 1. Had the Whipple surgery which the surgeon was confident that he got it all . Had 21 lump nodes taken out with 4 that were cancerous. But while I was open did a around of radiation IORT I think I have that right. But at my 3 months check up of CT scan and CA-19 test found out that now it has went to liver. Had biopsy done and they took 3 samples they came back with necrosis which if I understand right it means the tumor is dead in the middle but may still be alive on the outside. Has anyone else dealt with this? I see a new oncologist on February 27th hopefully can get into a clinical trial. I am doing chemo right now Albumin-bound PACLitaxel and Gemcitabine. First round of chemo before surgery was 5fu and then also did 28 days of proton radiation while taking chemo pill Capecitabine. Have a CT scan scheduled for March 12th. Just was looking for someone who's liver tumors are nercosis and what did they do for you. Thanks !

I pray that my case can give you hope. I had the Whipple procedure in 2018 and the pancreatic cancer returned in 2023. But went dormant after stereotactic radiation. It returned again in 2024 and I am undergoing chemo right now and after one month the results are very good as indicated by the CA 19 nine marker and a pet scan. I pray it works the same for you. I am excited and happy to be taking chemo therapy. It appears to be very effective after only one month. 🙏🏼💜

Have you tried GA chemo? It seems to work well on the liver. Also there’s different focused radiation types and also proton therapy though not a lot of facilities that do that - I think proton is good for nodules or tumors rather than lesions.

So good to hear that you're doing well. Its been a real battle at my end. I'm in a break period for a couple of weeks before they start my third regiment of treatments. The cancer continues to grow and this is my last hope. I truly wish you all the best. Stay strong and never give up hope.💜

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I love your faith mantras and I’m totally there as well. Faith gives us strength to fight this disease. To keep myself balanced though, in the back of mind I do acknowledge we all have a time limit and ask for God’s strength and mercy as we go through this journey; whatever outcome He may decide for us. God bless.