Pancreatic Cancer Group: Introduce yourself and connect with others

@blackie17
Sounds like Folfirinox - Oxaliplatin, Irinotecan and 5FU? The 5FU is the one you take home for 40 hours. You will feel pretty awful at the start and it does get better but very very slowly. Hang in there.

Hi, I currently have symptoms of pancreatic cancer.
I will be having a MRI soon and that will tell
me yes or No.

If affirmative I will be back to learn from others
how to deal with it. And God forbid it is not stage 4.
If yes, easy to deal with, just get my "Will" and testament up to date. : -(
Thank You

@blackie17 sorry to hear about that. I grew up in Philly, so I know your area pretty well. I have a different type of pancreatic cancer. But, others on here have experienced your diagnosis and treatment. I just want to ask a few more questions, so those folks can share their journeys. Ok? What are the three drugs in your three drug combo? What pancreatic enzyme were you prescribed?

@blackie17
Tom, I am not feeling well. They just RX’d me a pancreatic enzyme replacement. I’m hoping this is a covered expense and is helpful.

I am taking the three drug combo through a port and I go home with a pump following the infusions

@tomrennie
Hi Tom,
Adenocarcinoma, spots on liver as well. Had biopsy by endo which confirmed the spread. I had visited Sloan Kettering in NYC and also Stonybrook out on LI. Opinions were the same which was inoperable at this point. I live in southern DE.

@blackie17 Hi Mike and welcome to Mayo Connect. Can you please share what type of pancreatic cancer you have? How was it diagnosed? What type of chemo are you taking? How are you feeling overall? Thanks.

Hello all,
My name is Mike K. I was first diagnosed with stage 4 on 9/25/25 which was found by CT scan. My PCP thought maybe a gall bladder issue. I had been on Ozempic and I think the side effects from that masked my real issue. My second round of chemo is this coming Monday.
Thank you for having me.

@dianegil Same as my husband. Radiotherapy did not work for him and damaged his intestines and stomach. Had 3 surgeries; 2 to fix the damage. Radiotherapy was supposed to work but it did not. He's now back on Folfirinox.

Hi Colleen - Thank you for reaching out.

We did get the PET scan done. It did show activity in the surgical bed of his pancreas. They did a biopsy. It did come back negative, but they did comment that they were not able to get directly into the "hot spot" showing on the PET Scan, because it was too close to other things. Luckily it is isolated to the pancreas for now. We are scheduled to meet with our Oncologist next week along with a Radiation Oncologist. Not sure the plan of action, but I am hoping they will move forward with radiation. Want to kill what ever is happening in there.

@fdh
Hi, you diagnosis sounds just like mine. I to was diagnosed in Sept. 2025 & have type 2 diabetes. I live in Manitoba. Are you going through CancerCare. What province are you in?