Pancreatic Cancer Group: Introduce yourself and connect with others

@12cows6025, how is chemo going? How are you doing?

I too was diagnosed with cholangiocarcinoma on July 1 2022, and had a robotic whipple surgery. The surgeon removed my gallbladder. I wonder why your surgeon didn’t remove your gallbladder. I developed other issues because he built a bile duct out of other tissue and it started to close, so l had to have biliary tubes inserted to keep the duct open. I had to have the procedure every 2 weeks to replace the smaller tubes with bigger tubes. This took 6.5 months. I am doing okay, but I have started to feel some discomfort in my abdomen since last week. I go for a mri next week.

Welcome, @12cows6025. I hope that chemo treatment with fluorouracil (5FU) is going okay.

You may wish to join @mnewland99 and others in this discussion:
- Treatment for metastasis to the lungs?
https://connect.mayoclinic.org/discussion/treatment-for-metastasis-to-the-lungs/

Hello my name is Kathryn and I was first diagnosed in July 2022. After chemotherapy and radiation I was cancer free for two years and in November 2024 cancer was discovered on my gallbladder. Having the Whipple procedure at the end of June- Dr Stucky is my surgeon - anybody here that has had the procedure and Dr Stucky operated?

Thanks so much

Sorry to hear what you are going through. Were you offered surgery at Stage 2? Why only 2 rounds of chemo so far?

Hello to all I was diagnosed on Febuary 6,2025..with Stage 2+ pancreatic cancer and now is stage 4 as it has metastasis to lungs. Have had 2 rounds of chemo. 5-Fu..

Welcome, @grizzlyman. You may wish to check out the discussion related to cholangiocarcinoma here:
https://connect.mayoclinic.org/search/discussions/?search=cholangiocarcinoma

I am going into my 3rd year after diagnosis for cholangio carcinoma, and was looking for patients who had to have biliary tubes inserted in their liver to keep the reconstructed bile duct open and ask questions about how they are feeling and any other issues they might have had.

@ggmama1, I can understand the fine line that you have to walk as a parent. You care for your daughter, but you don't want to intrude or ask the wrong questions at the wrong time. I know you are eager to get details and to know what is going on and how she is doing. Of course, we then ask questions. And questions might not be welcome.

I wonder if it might help to just let her know you're thinking of her. Do you communicate mostly by email, text, phone or in person? Do you live close by?