Pancreatic Cancer Group: Introduce yourself and connect with others

Hello mchris327. I am sorry to hear and is understandable to be overwhelmed. I am a 10 year survivor and was fortunate to get good care right away. Sure there are challenges being in a small town so you will need to get some referrals. PanCan ( Pancreatic Cancer Action Network is a wonderful resource so maybe contact them. I am sorry you are dealing with this but there is hope. My best to you in your journey!

Hello mchris327. I am sorry to hear and is understandable to be overwhelmed. I am a 10 year survivor and was fortunate to get good care right away. Sure there are challenges being in a small town so you will need to get some referrals. PanCan ( Pancreatic Cancer Action Network is a wonderful resource so maybe contact them. I am sorry you are dealing with this but there is hope. My best to you in your journey!

Hello mchris327. I am sorry to hear and is understandable to be overwhelmed. I am a 10 year survivor and was fortunate to get good care right away. Sure there are challenges being in a small town so you will need to get some referrals. PanCan ( Pancreatic Cancer Action Network is a wonderful resource so maybe contact them. I am sorry you are dealing with this but there is hope. My best to you in your journey!

Hi allow me to introduce myself mchris327. I’m diagnosed with pancreatic cancer yesterday. So overwhelming! To say the least. What next? PET, radiation, chem and surgery. I live in a very small town ( unincorporated 250 +, and that two hundred and fifty! What next? No know cancer besides my brother with liver cancer. He’s been struggling with it for quite a few years. I do have Cirrhosis but not liver cancer. Don’t know what stage my cancer is, but have read that normally not diagnosed until you have symptoms which could mean your cancer is beyond stage one. And info would be greatly appreciated. And I have to say I’m sorry that anyone has to endure this disease.

Hello, my father had chronic pancreatitis and had to go through the Whipple procedure as it was the only option for him according to every doctor we visited, the operation was nearly three years ago but unfortunately he’s still losing an enormous amount of weight as he lost nearly 120 lb, he is still not able to eat a complete meal without getting diarrhea and stomach pain, he is a walking skeleton and people get terrified of the way his body and face looks, he’s not taking any vitamins or supplements and his diet is so light, any information that helps his case would be much appreciated, thanks.

Yes, the spellcheck is funny at times and of course I didn’t check that post before I sent it. After I had sent it, I started laughing at myself. When I was initially diagnosed, they did not give me a stage, even though I had asked for that. Throughout my treatment I have not Been aware of any stage or what my mutations may be. I will look into those two items sometime this week. The Mayo Clinic is treating me along with university of Kansas. I am currently not on chemo or radiation. The doctors have all said I was “an anomaly and “exception to the rule“. When I have recently visited them, they all have told me they did not expect me to be Here two years later.

ronninemire - creative way of designating FOLFIRINOX as full fear knocks” ha ha. My favorite of course is just FU. However, very much agree, “happy to be alive”!
So you aren’t on any chemo right now and your tumor marker is normal? That’s fantastic! Were you stage 1 or 2 at the time of surgery? Also, do you mind sharing what your mutations? Mine were/are ATM, KRAS12D, and TP53, and TSC2.