Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.
Connect

@casey1959 Congrats on your anniversary but I understand it’s not the celebration you’d like to have had due to your husband’s Whipple. Only the best thoughts and prayers for both of you, for successful procedure and good recovery.
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4 Reactions@tomrennie I was on Gem/Abrax and it caused much more peripheral neuropathy than the Folfirinox I'd had previously. It seems to be very subjective and some people are afflicted and others not. You might talk to your oncologist about cold therapy and the booties/mittens before starting Gem/Abrax. I sure wish I'd have know about the cold therapy before starting on it. "I have a different type of pancreatic cancer." Is it the acinar cell type?
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3 Reactions@casey1959
Correction: 04/13/2026 April, not March. 🙃
@gvk911 This is a journey. One day at a time yet we've always felt comfort in having a plan. Stay focused & strong.
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4 Reactions@gvk911 I wouldn't be surprised if your prostate cancer is related. About 90% of prostate cancer diagnoses are also adenocarcinoma. Good luck with your CT scan today. Let us know how it goes? I have a different type of pancreatic cancer. I have not been on Gemcitabine plus nab-paclitaxel (Abraxane), but others here have. There are some ways to help manage the side effects of the treatment. Anyone that has experience with this treatment, do you have any suggestions? Thanks.
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3 Reactions@lynnlevine
Early detection clinics are beginning to appear. There is not a “take home” early detection packet but you will certainly qualify at a clinic to be carefully surveilled. They will offer genetic testing and molecular testing to determine if you have mutations. I would strongly suggest you enroll in one of these. Stage 1 and 1B patients most often have very good survival statistics!!
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4 ReactionsToday 3/13 day after our 51st wedding anniversary my husband is receiving the Whipple. Wasn't what he was planning on. Yet he decided to move forward with this journey. I'm so great full to this group. I'll keep you all in our prayers & asking for the same today & beyond. This will be a stressful long wait in the waiting area. We're a team & I'll be positive .
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10 ReactionsHi. I’m Lynn. I don’t have a Pancreatic Cancer diagnosis at this moment but almost everyone in my maternal line going back that I am aware of died of this cancer. Reading the messages you all have submitted makes me hopeful and less anxious. I have already had endometrial cancer and been treated for it, so I have some experience with cancer. But pancreatic cancer is different and makes me more anxious.
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3 Reactions@tomrennie
Hi Tom,
The liver cancer that I have is
"Final Diagnosis
Liver Mass Needle Biopsy:
- Moderately differentiated adenocarcinoma favour metastasis from an upper GI/pancreatobiliary origin
- See micro
Electronically signed by Shaun Arthur Copley Medlicott, MD on 31/03/2026 at 13:07 MDT
Microscopic Description
Excellent sampling of liver has captured gland forming adenocarcinoma with goblet cell and signet ring cell morphology effacing portions of otherwise relatively normal liver parenchyma. The presence of goblet cells may correlate with intestinal differentiation of the tumour. However, morphology of carcinoma is relatively generic.
Given the presence of a new pancreatic mass causing duct stricture and a tumour immunophenotype refuting prostate and colon primary origins, a pancreaticobiliary/upper GI tumour derivation is the preferred diagnostic scenario.
It should be noted that histology data, in isolation, cannot exclude other primary tumour sites such as lung, salivary gland/breast neoplasia."
The pancreatic cancer that I have is
"Clinical Information
2cm solid mass in pancreas body with distal duct dilation; also multiple liver lesions.
Pancreatic mass
Final Diagnosis
A. Pancreatic biopsies:
- Adenocarcinoma consistent with pancreatic ductal adenocarcinoma."
I do not know what all this means but my oncologist told me that the liver has pancreatic markers. Right now, I do not have plumbing issues, however, I also have prostate cancer.
The chemo that I am taking are Gemcitabine and Paclitaxel NAB. Starting April 21 the treatments are every week for three weeks and then one week off and then it repeats.
After some reading, I did realize that most pancreatic cancers are found late and therefore they are at stage IV.
I will find out whether the tumour shrinks and see what happens.
I have a CT scan tomorrow. This will be for a baseline.
One of my nephews sent me a couple of links on other treatments, but I am not sure of them. My daughter suggested that I get a second opinion. I will call my GP next week.
Take care,
Glenn
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5 Reactions@gvk911 I too have stage IV. That will be 4 years at the end of June. You can make it. You don't say what chemo you will be getting; sounds like gemcitabine and Abraxane. You don't say how old you are, but if you have trouble tolerating 3 on and 1 off, try 2 on and 1 off. My oncologist said the 2/1 was better tolerated. I had 85 total chemo treatments. Right now, I am on a break. I do not recommend doing 40+ chemo treatments then a break. Too rough on the body! 🙂 But, hey, I am still here at 76 & planning on more years with God's help!
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9 Reactions