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Pain since prior to gallbladder surgery
I am unsure where my original post went. Im just looking for those in similar situations, what were the outcomes what were the diagnoses. In 2014 I started to have gallbladder attacks that would last for 2-3 weeks. It took until 2017 to have gallbladder removed there was no sludge, no stones it was functioning at 2%. I had the gallbladder surgery woke up in excruciating pain not like surgical pain continued to have more intense "attacks". A month later they found 2 tears one at the pancreatic duct and one at the liver duct. I had an ercp where stents were placed for 12 weeks. And dealt with pancreatitis and elevated liver enzymes during that hospital stay. Doctors said I shouldnt be having pain but I was. Pain continued, and could feel the placement of stents. I have been in and out of the hospital for years over 12 hospital stays averaging 7-10 day stays. All tests have come back normal (CT,MRI,Bloodwork) other than a little gastritis during an endoscopy. Ive had a small bowel study which showed that everything goes through my small intestine within 14 minutes. Ive been dealing with chronic fatty stools diarrhea up to 10 times a day-which lead doctors with a dx of exocrine pancreatic insufficiency (EPI). I was placed on a high dose of creon which helped with diarrhea but pain has remained. Pain is becoming so severe that I cannot leave my home, it wakes me up from sleep, Im having excruciating pain within 30 minutes of eating. It is a constant 8-10 out of 10 pain with no relief. The pain is located on the end tip of sternum, epigastric region, directly in my back behind epigastric region and towards my right side under my right breast Im pleading with doctors or anyone with any information or insight what can be causing this pain please respond. I have an appointment with Johns Hopkins in July and trying to get into Mayo if I can be seen sooner. I just want to be able to function again.
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@christina315, do you go to ER as soon as one of your attacks begins? This past year I had 12 attacks that sound similar to yours, but after my first trip to ER that showed nothing, I stopped going but had multiple ct scans and lab work. Fast forward to February of this year, when I went in immediately and technician saw volvulus bowel. That discovery led to emergency surgery and nine days in the hospital. I encourage you to get to ER as soon as possible at onset of pain and ask them to check for a blockage. Good luck.
I usually do not go at the onset. I tend to go day 2-3 after attack started because I tend not to be able to withstand the pain by that point and usually my vomiting and diarrhea are getting worse by then
Lately, I try to bite my tongue because I go to the ER they dont see anything wrong with my blood tests other than dehydration when my diarrhea is worsening. Then they send me home and tell me to take nsaids or tyenol which do nothing.Even when given opioids it only brings me down a pain level 7. I just do not know where to turn to its impacted my family, career and wellbeing in general. Thank you for the insight. I hope you are getting resolve for your health issues.
My daughter had her gallbladder removed last January. And they had a blood vessel bleed that was clamped during surgery. Her post op was bad and she was on an all liquid diet for a while. It looked like it was improving then in November (6 months ago) things took a turn for the worse 5 specialists later and a ton of medications and she still is so nauseas all day can’t eat really losing weight and collapses sporadically from syncope episodes. All lab work shows nothing abnormal ultrasound was normal and I am scared she’s just not improving. I asked for them to order a cat scan. I am concerned as to why she’s now 💯 times worse a year later. The surgery made things unbearable. She can’t go to school or work or eat barely. She has tried tons of meds for symptoms. Nothing works. Gastric emptying scan was normal. Although she has to be on motegrity and mag 07 in order to even move bowels. We have an appt with NY next month. But I am scared for her. We have no answers. Please help
How old is she ?? It sounds awful for her . It’s especially frustrating when you have tried everything and all tests look normal. Which hospital 🏥 in NY will you go to ? I went to 5 Gastro Drs in 2 states in 8 years and had over 15-20 tests done . Including Mayo Clinic Jacksonville in Oct 2021. I have 6 diagnoses tried everything and still so sick in gut and intestines every single day and night . No one can help me . I’m 60 started at 52. She’s so young …. I pray 🙏 you get the right Dr. that could help .
People tell me to go to a functional medicine Dr. But we spent over 5k out of pocket last year in co pays and max out of pocket for insurance. Those Functional medical Dr’s or Nuropathic do not take insurance.
I’ve already tried many holistic approaches and everything RX and everything they make for gut health. I live on Ultra Pepto. Strange thing is as little as I eat , I can’t lose weight. I eat small and healthy. I Belch over 2000 x a day/ night w/ non stop churning 24/7 .
🙏🙏. Praying for her .
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1 ReactionThank you. I do pray for you too. She’s 18 We are going to try MT Sinai. She takes Elavil, Periactin, Prilosec 40 mg, motegrity 10 mg, Mag 07 for bowel movement. Nothing helps. Have you had nuclear testing ?
Mt. Sinai is a great hospital. What do you mean nuclear testing? I’ve had over 15-20 tests . Praying 🙏
Cat scans. MRI. With contrast.
Hello @meredith81876, I would like to add my welcome to Connect along with @rozy288 and others. I cringed when I read about your daughter's gall bladder surgery. It sounds eerily similar to my wife's gall bladder surgery 15+ years ago. My wife almost bleed out during what I was told was a routine gall bladder laproscopic surgery. We were referred to Mayo Clinic Rochester who did a followup surgery to correct the problems caused by the first surgery. I think it's good that you are seeking help at a major hospital like Mt Sinai.
I think my wife's problems were caused due to bile drainage problem after the surgery. I think the bile duct may have been nicked during the surgery but we really don't know. We had a consult with Mayo after being referred there by the first surgeon and that's when they said they would like to do another surgery. It was an uncomfortable discussion. We were not looking to blame the first surgeon but just wanted the problem corrected. The second surgery and recovery went well for my wife. My wife lost almost 100 pounds while she was sick during this time and she has kept it off so we did have a plus from her experience.
Praying that both you and your daughter get some answers and a treatment that helps. When is your appointment at Mt. Sinai? Can you let us know what you find out?
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4 ReactionsThank you so much for your story and welcome! We go on 4/11/22 I feel they did something similar to her during surgery as far as injury. I can feel it in my heart. She’s so weak so I am praying that we get answers I will def keep you posted !
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1 ReactionI had gallbladder surgery 2012 and never lost weight but gained. Have trouble eating leafy vegetables, fiber, fruits, etc. it causes diarrhea, gas & bloating. When i do eat a meal other than salads, i have bloating and gas. Does anyone else suffer from these issues? I also had some of the Sigmoid bowel removed. Sometimes I can eat and no issues other times, severe acid reflux. Taking meds for acid reflux. Thank you.
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