Pain pump, I have one, how about one for you?

Posted by Stephen @wsh66, Nov 9, 2018

I have had an implanted pain pump in my abdomen for about 18 months. It is a miracle. I get a total of 4.764 mgs. of Dilaudid, If I administer all of the 10 extra micro does I can have in 24 hours. If I don't use those extra doses I get 2.74 mgs. over 24 hours. The effect is 300 times more effective than if I took the same dose orally. I go to my doctors office every 3 months to have the pump refilled. I'm there for about 15 minutes. The actual process of refilling the pump takes no more than 5 minutes and is painless. No prescriptions to worry about, no one wondering if I'm misusing or selling my pain meds, no one making me feel like a drug addict or a criminal. In our current climate this is even more important than it was two years ago. Many Doctors want nothing to do with pain patients or writing scripts for pain meds. I know many of you have been there. This method is especially good for back issues as the drug is delivered via a catheter which runs up my spin. Yes, I still have pain but it's pain I can live with. If your Doctor doesn't know about this or doesn't want to do it contact a pain clinic. The Doctor who put mine in is a Neurosurgeon. If you have any questions please respond.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Can you have mri and c-scans with one. I have phantom pain and sensation. My foot that is not there any longer hurts really bad. I feel like I have a shoe on that’s a size too small and like I have an ingrown toenail on that foot. And besides that I have severe pain in that foot and leg . Don’t know if it would help this or not. I will try about anything. No one seems to know anything about this type of pain or how to stop it. Glad you found something that works. Thanks.

REPLY
@carolynhughes75

I would not use any pain management doctor who would consequently let a patient go through withdrawals.

Jump to this post

Are you referring to pain doctors who require patients to wean off their oral meds before getting the pain pump? I have heard of this practice and thought it is cruel, but assumed it must provide some therapeutic value to the procedure.

REPLY
@jthomas458

Are you referring to pain doctors who require patients to wean off their oral meds before getting the pain pump? I have heard of this practice and thought it is cruel, but assumed it must provide some therapeutic value to the procedure.

Jump to this post

No. I saw a post where a pain doctor was going to lower a patient's pump by 50%, just to see if it was working. A decrease that drastic, would probably bring on withdrawal symptoms. I find that type of thing, as a bad practice. Weaning from any type of narcotic, should be more gradually.

REPLY

I see. So, the doctor thought s/he would know the pump was working if the patient experienced withdrawal symptoms from the medication reduction. That sounds cruel and reckless.

REPLY
@morkat

Next year I will be receiving my third morphine pump. I can sing the praises of the pump; without it I would not be able to get out of bed. My pain involves all vertebrae in my spine; neck, thorax and lumbar spine. When I started with the pump, I used an extremely low dose of morphine, it had to be specially ordered. In 13 years I have had only 3 adjustments in the amount of medication I receive. At first you need patience as your body adjusts from pills to the pump. However, although you feel better your condition continues to do damage to your spine. I felt great relief from the pump, but have symptoms break through now and then (example, falling from
nerves being inflamed). Most times if I go out, I use a cane or for long distances a wheelchair. I try not to panic and be swept up in the vortex of projection and anxiety. I hope you find the relief I have been granted and you get some relief.

Jump to this post

Your third pain pump? Why so many? I've had my Medtronics pump for two years with no pain relief. I've three pumps? had the output increased more times than I can remember. I am now in the process of having it reduced so I can have it removed. What led you to having more than one pump?
Thanks

REPLY
Please sign in or register to post a reply.