Pain in back and chest.

Posted by namd @namd, May 19 10:37am

Has anyone experienced pain in and around their lungs. It is difficult to describe but it is not like pleurisy as I have had that and it does not get worse when I breathe or cough. I have bronchiectasis but have recently been diagnosed with with MAC for a second time after being clear for a year. I take paracetamol when I remember but it does not hit the spot. I am unable to take anti inflammatory pain relief due to having reflux. If I overdo things the pain gets worse. Just wondering if others have experienced this as I did not have this symptom the first time I had MAC.

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dlydailyhope | @dlydailyhope | May 20 7:46am

@namd
Are you taking antibiotics regularly and doing any therapy to remove mucus?

1. https://my.clevelandclinic.org/health/diseases/22256-mac-lung-disease
2. https://www.lung.org/lung-health-diseases/lung-disease-lookup/mac-lung-disease
3. https://www.verywellhealth.com/mycobacterium-avium-complex-8712033
4. https://www.everydayhealth.com/rare-diseases/mycobacterium-avium-complex-infections/

namd | @namd | May 20 11:54am

In reply to @dlydailyhope "@namd Are you taking antibiotics regularly and doing any therapy to remove mucus? 1. https://my.clevelandclinic.org/health/diseases/22256-mac-lung-disease 2...." + (show)

Watch and wait for me at the moment. The thoughts of going back on any antibiotics fill me with dread!
I carry out twice daily lung clearance exercises and I am going to start saline nebs soon. None of these were shared with me back in 2022 when I was first diagnosed with NTM. It was through research that I discovered how to clear my lungs. Thank you so much for the links. I think the pain is from my bronchiectasis. I have just finished a 10 hour working day as a teacher which was non stop. I did not have much pain but peehaps it was because I was so busy I did not have time to notice! No 2 days are the same. The weather is good a lovely 20 degrees!

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