Squamous cell carcinoma (SCC) P16+
the biopsy stated P16 positive squamous cell carcinoma with associated necrosis...
Things are flying by me so fast, yet I read the article from Mayo saying less is more. Also waiting on a call back as I want to explore the options that I don't even know what is about to happen, I have never ever had any issues and out of no where here this lump is.
I should state also I've never ever had surgery, been in the hospital etc. but also I am very careful as I totally freak out (potential heart attack levels of freaking out) with needles and anything medical. I can't even stand to be in a hospital room. So when things are flying at me I have zero time to try to wrap my head around any of this.
Sorry for the long wind.... but any info to start to process this would help. I'm supposed to do a PET scan when I get back from vacation. trust me when I say that took me 2 weeks to get my head to where I MIGHT get through it.
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Good news. The recovery from surgery is sooooo much easier than the recovery from radiation, which in most cases one never fully recovers. And it takes months to years before that settles out.
Each day should get a little better. Frightening stuff this cancer but in some ways it can center your life a bit. I wish you well.
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1 ReactionSo still recovering from surgery. Drain is out. Staples come out tomorrow. Have an office at home so able to do some work. But this recovery is slow. Eating really well. Pathology came out and margins are clear. Surgeon predicted this outcome and will steer away from radiation. I meet with him tomorrow so excited about that. Really trying to keep my mind in the right place and that's proving difficult. Taking walks and stuff like that so that's helping. I feel like I should be celebrating but not feeling that way.
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3 ReactionsYes, it will get better. The Tons of mucous almost drove me crazy but it's all gone now. Unfortunately this surgery does leave some pain initially to deal with. I kept telling myself "it's temporary, I handled it yesterday and I'll handle it today and tomorrow." Best to you.
MOH
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3 ReactionsI imagine so only few days out of surgery. I had alot of throat/ neck swelling. Tons of mucous , nerve pain where they were cut in the neck. Opioids prescribed by Doctor really helped me the first 10 days. Eating anything or drinking will be difficult. I slept upright for 2 weeks. It WILL get better.
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4 ReactionsYes. I have Squamous Cell Carcinoma. I had surgery in May - removed left parotid, left ear drum, small amount of bone in jaw and 16 lymph nodes on left of neck. 3 tested positive. Facial nerve was severed. Had chemo and immunotherapy 4 times per week for 5 weeks and radiation in head and neck 5 times per week for 6 weeks. Follow up CT scans showed clear. Will rescan in a month or so. Thanks for reaching out.
MOH
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4 ReactionsAnd I guess from the beginning my whole intent was to find a way to stay alive. Side effects could be handled. But I'm not sure I see anything wrong with letting them monitor me closely and see what happens. But I will say that at day 5 out from surgery this is not becoming any more fun.
A belated welcome, @cparadise2. Do you also have a head and neck cancer? I look forward to getting to know more about your experiences.
Radiation...the gift that keeps giving. The side affects can be as nasty as the confrontation with the cancer, in my case.
So as of right now my wife just told me they want the drain out Monday and staples Wednesday. So maybe some discussion there. I think everything is riding on the pathology report which could be a couple weeks out. But the surgeon is pretty set on not putting me through radiation. There was one node that is hard to reach but he got a sample and says it should be benign but the way I understand it that's the important one. Overall, I feel positive. But today is day 3 after surgery so pain is elevated. Thank you for chatting. Honestly does help.
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1 ReactionThere have been advances in this particular cancer treatment which I did not have access to years ago. Radiation can and most likely will result problems for years if not forever. I understand your concern with reoccurrence however the option then for radiation would still be on the table. Our concern about the big "C" returning is forefront on most people's mind for years. It is only natural.
I recall at my five year mark the oncologist telling me that now my risk of return is that of the general population. To which I replied that it is now exactly where it was when I got cancer therefore I am not comforted by that statement. Now that I am older it is no longer a concern.
Have you been advised if you will have a followup medication?