Ostomy: Adapting to life after colostomy, ileostomy or urostomy

I was in hospital for 5 days (but I had some underlying complications). I found the pain tolerable without drugs from the first day....but the doctor and nurses were surprised. Pay careful attention to your ostomy nurse. He/she should come by several times to make sure you understand how to use your devices. I also had a home nurse for the first few weeks who helped me change my product. Even then, I was still learning new little tricks as much as a year and a half later. Godspeed on your surgery.

An ostomy is a life changer and not exactly dinner conversation with your friends or relatives.
I strongly recommend joining this group https://phoenixostomy.org/ For $20/year they offer a
monthly newsletter where I always learn something and feel a little less odd.

I look forward to receiving their magazine. I used to do Pilates (reformer) before my surgery (permanent colostomy), and stopped afterwards afraid to hurt myself. But I found an article about an ostomate that after his surgery he improves his scar tissue and nerve problems by doing Pilates (reformer) and became a certified instructor. I contacted him and he started giving me lessons via zoom which helped a lot with my recovery. He also answered a lot of my questions and concerns about the recovery. Also, I always learn about new products.

I have prolonged ileostomy post operative pain for several years, epecially in the area of rectum, which was removed. The Surgeon and the Pelvic Floor Doctor have me taking PT, which was prescribed several years after the surgery along with pain lasting that long. I am not having any real postive results from the PT, after taking the therapy for a couple of months. Was wondering what is the procedure for PT after the surgery? Also, is anyone having postive effects from participating in the physical therapy? Appreciate everyone's time and effort in responding to my questions.

I'm going in for ileostomy on 24 July.
What will I feel?

I was diagnosed with anal cancer in October of 2022. After 6 weeks of chemo and radiation not only is the cancer still there, but it is growing. I am still in disbelief and riddled with anxiety. I have an appointment this week with a surgeon this week to discuss my options. I will need a biopsy before anything else is done. My options will be Immunotherapy or colostomy. I have been reading about both, try to educate myself. I have been dealing with fecal incontinence for months now which is no fun. I would love to hear about your experience with a stoma. Any and all advice is welcomed.

My sister is in great pain from the osteomyelitis adhesive when changing bags. Any suggestions?

I meant to say osteomyelitis bag.

Here we go again with automatic change. It is ostomy

Did you have any reaction to the adhesive?