Osteoporosis at 32, any successful stories?

tinyseacat, both celiacs and corticosteroids are hard on the bones. Ask your doctor about a course of Forteo. I suspect it will set you right. Injectable medication would be better for you because of poor absorption with oral drugs when you have celiac disease.
Pay close attention to nutrition. Your nutritional status will affect the health of your children and their children. You really have to do it all exercise, nutrient dense foods, vitamin D3, Calcium, Magnesium, K2. Being scared can be motivating, being depressed is not. You are making this change in time to protect your dream of having healthy children. Best wishes.

@gently thank you so much. I am really scared and a bit depressed honestly. Can i have that medication before any pregnancies? Will it affect the fetus. I didnt find a lot of information about that topic and that scares me.

The manufacturer's guideline is to not take Forteo while pregnant or nursing. They don't have any studies on humans regarding pregnancy *after* a course of Forteo is completed. Forteo does not stay in the bones, unlike biphosphonates, so if you stop taking it before pregnancy, you should be okay. But, Forteo is generally followed up with a biphosphonate, so that could be a problem.

Your T scores aren't terrible. If you adopt a strict gluten-free diet, and concentrate on nutrition (including calcium and vitamin D3) and exercise, your bone density should improve.

Are you anywhere near NYC? Columbia has an early-onset osteoporosis program that might be ideal.
http://www.eoc.columbiamedicine.org/patientcare.html

@njx58 Thank you so much. No, I am from Europe, I scheduled appointment with rheumatologist to see my options. Just got scared with the results and wanted to see is there anyone with similar story and success. I just need to know can I have a normal life with this diagnosis.

After you meet with the Dr. Find a good Oneo to trainer, or a benefit trainer and start lifting weights. Also have your hormones tested. You may need to start HRT.

@tinyseacat I’m so sorry you are having to deal with this at such a young age. I really encourage you to take your time and educate yourself on all options and don’t rush into taking a medication. There could be other underlying health conditions, so understanding that will help guide you to the best plan. This community is here to support you!

@tinyseacat, you wouldn't want to take any of the osteoporosis medications during pregnancy. And I can see why you might not want to delay your opportunity to become pregnant.
But you weren't on steroids for very long-- your bone loss may be more a result of celiac. And your density might not be as low as dexa is indicating.
If you are small boned, the limits of dexa will mistakenly that your bones are less dense.
It you don't want to wait two years for your pregnancy, you can focus fully on nutrition and exercise.
Osteoporosis doesn't interfere with your ability to become pregnant, but pregnancy puts physical strain on your skeleton, both from the awkward position of the weight and because of the baby's need for calcium. And because of the thoracic strain of holding a baby.
https://www.girlsgonestrong.com/blog/articles/5-best-exercises-to-prepare-your-body-for-pregnancy/

I'm 83 and have had Osteoporosis for some time. I have been on Prolia for quite a few years until my insurance would not cover it. Then I was put on the next one down. Now none of the insurance companies will cover those either. After researching the other choices, I will not take them. There are too many negatives. Also, if you have Thyroid problems, kidney problems there are also a health items to considers.
All the ones the people tried and have had problems with one line I read about 1st and would not even go there personally.
Right now, I do not know what I will do but I will not use any one the ones everyone has been using and have had major problems with.

Any young person concerned about their bones need to worry more about their proper diet and exercise routine to build up their bone health while they can. Stay active and eat healthy foods.
Walk, fitness classes: on line, gym, TV, walk with friends, put the kids in a stroller, on a bike and go. There are weekends to do this if you are working.

@maryandnans Thank you!