Osteoporosis AND Bone Marrow Disorders

Posted by njhornung @normahorn, Mar 16, 2024

I will admit that I am probably overconcerned about nothing but information on the subject seems to be scarce. Hopefully this forum will serve as a central pace to gather information confirming or refuting any concerns,

I have CLL, chronic lymphocytic leukemia, at stage 0. I hope to never leave that level and do not want any osteoporosis treatment to kick me up or increase my risk of secondary infections. The anabolic treatments might do one or the other.

If, and I stress if, sclerostin depletion lowers our immunity, that could be serious for a leukemia patient. There was a report of a new cyclic study the other day that indicated a person with a bone marrow disorder might be excluded from participation. That makes me wonder what they know that I do not but maybe should

I would like to gather in one place a list of references that we can share with our oncologists for their input. Anyone who comes across a study pertinent to this discussion is welcome to share that.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

This is not a study but a recommendation from Johns Hopkins. I would imagine this would apply to Tymlos as well.
Our choices are limited.
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Persons with elevated calcium levels, women who are pregnant or nursing, or persons who have ever been diagnosed with bone cancer or other cancers that have spread to the bones, should not use Forteo®. Because long-term treatment effects are not known at this time, therapy for more than two years is not recommended.
https://www.hopkinsarthritis.org › ...
Forteo Information : Teriparatide - Johns Hopkins Arthritis Center

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