Oral Lichen Planus Flare-Ups and Covid Questions
I am a new member of the Group. Thank you for the chance to share and to learn.
I have Two Questions for the group:
First, I have had erosive lichen planus for almost three years. My first question is whether flare-ups always appear in the same spot in the mouth or can they appear in different locations over time?
Specifically, my lichen planus is under my tongue. I'm curious whether it can spread to areas of my gums? I have been experiencing some type of issue with the gum tissue around several teeth in my lower mouth. It is probably related to a mild form of gingivitis (what my hygienist and dentist believes), but did want to ask this question to see if anyone else on the forum has dealt with a similar issue.
Second Question relates to Covid and OLP. My wife traveled to Alaska on business during August of 2022. She took all appropriate precautions to protect against Covid (the best masks...never removed them on the plane...always wore them during meetings, etc.). Nevertheless, she contracted Covid and began to evidence symptoms the day after she returned. I starting showing symptoms about a day later. My version was much worse than hers. Very high fever, but fortunately broke the day before we were going to take me to the ER. I then recovered nicely and thought all was well. However, almost one month later while I was undergoing my standard dental cleaning, my dentist noticed something odd under my tongue. This turned out to be OLP. My only occasional dental issues prior to this was occasional canker sores and an odd bought of oral thrush about eight years earlier (odd in that we could never determine what caused it).
Which brings me to my Second Question: Could Covid have initiated my OLP? I am absolutely convinced that it did because of the timing. To me it is a simple version of cause and effect. However, I can only find random reports of specialists online making such a connection. What are the thoughts of the forum?
So you know, an oral specialist at the Univ of Washington Dental Clinic and my Dentist have been closely monitoring my mouth since I was diagnosed. I live in Metro Seattle and am 71 yrs old. Very athletic for my age and in excellent health...except for this minor detail!
Thanks for the feedback.
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@carygrant082 I have had oral lichen planus for many years, but it was only diagnosed in 2014 by an oral pathologist. Before that I had seen several dentists, a periodontist, dermatologist and maxillofacial specialist. None of them could figure out what it was till I saw the oral pathologist in 2014. I saw another oral pathologist in 2021 who prescribed Lyderm gel (off label) which has worked to keep it in control. I applied the gel only for ten days but after that I have used it only when I have had a flare. Lyderm gel is not recommended for extended use.
I have not had lichen planus under my tongue, but have around my gums, inner cheeks and inner lips. I find that if I eat mushrooms in any way, shape or form (e.g. gravy) I can expect a flare up within 24 hours - but that could also be sensitivity to mushrooms.
I had Covid in July 2022 too, but did not experience an oral lichen planus (OLP) flare at that time. People’s bodies are different, however, so I cannot say your flare was due to Covid or not; just that I didn’t experience that at the same time.
Covid-and other viruses too--can cause a cytokine storm in your mouth. An autoimmune reaction, basically. Certain drugs, like beta blockers, can open the door to OLP and so can vaccines, which can spur an autoimmune response along with an immune response. At least, these are my conclusions after doing some research on reliable sites and by hearing a lot of people report their experiences on the boards. It's my experience too.
I have recently been diagnosed with Oral Lichen planus.
I used Clobetosol for a week and it went away completely in three days but now one week later it is back. Blisters on either side of tongue . Splotches on cheeks and red spots back of throat. Interestingly, it flared the day I had a biopsy for suspicious nodules on my thyroid. Lots of needles in my neck. 50/50 diagnosis; rt side on left side Hurtle cells that need more investigation. I also have hEDS and chronic pain after a bad accident 2007. I’m depressed that it came back so soon. Before I only had chronic pain but now it seems more and more autoimmune issues are presenting. All they all connected? I guess it makes sense but it’s hard