Oral Lichen Planus and LANAP
Hi Everyone. I was diagnosed with oral lichen planus 7 years ago by an oral surgeon at a university dental clinic. I have moved and recently went to a periodontist because of a flare up. He is suggesting LANAP which is laser assisted new attachment procedure. I have some deep pockets but most are 2mm. I'm wondering if anyone else has had this procedure and can tell me about their experience. I'm finally out of pain after using a variety of steroids prescribed by this dentist and know that dental work can cause a flare up. Thank you for sharing any information you've discovered along your journey!
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
I just got diagnosed with the same. I’ll be so interested in the reply’s . I’m still waiting for my meds and am learning what I can eat without pain.
Hi, I have OLP also. I also have LP on my skin and Esophageal Lichen Planus, which is incredibly rare.
I was diagnosed 3 years ago with all 3 types of LP.
Through trial and error I learned I couldn't eat spicy foods not even a tiny bit spicy, stronger mint flavors, sour, acidic foods such as pineapple etc...
at times I can't even tolerate the acidity of an avocado, mint toothpastes, black or white pepper, raw onion, sometimes salt or even teriyaki sauce.
OLP tends to flare up and down. Stress, illness etc...effects the immune system and can definitely cause flare ups because all types of LP are an autoimmune disease causing the immune system to attack the mucus membranes in the body.
Also irratation in the mouth can cause flare up, even the bucal (cheek side) cups of the back molars can rub against the inside of the cheeks causing irritation and swelling.
I hope this helps you!
Take care❤️
I’m a retired RDH who was one of the first hygienists to be educated and certified in AZ to utilize lasers in dentistry. I saw hundreds of LANAP procedures over 22 years, and don’t recall ANY of them resulting in triggering LP issues in our patients. I paid very close attention to those details, as they were also MY patients. We used Nd:YAG laser for LANAP. (I used less powerful lasers for other hygiene procedures of my own.)
I will ask my dental friends about this, also, as I know how painful LP can be.
By the way, I’ve seen even 12mm pockets reduced to 2-3mm with LANAP. It’s a wonderful choice in halting periodontal disease.
Best wishes to you.
Hello, I have OLP and now suspect I have the Lichen planus in my oesophagus.
When I start to chew and swallow, I get an incredible 'thump' of pain in my upper chest, I then unable to swallow and I get the hiccups. After that I can swallow the food. Does that sound anything like what you have experienced?
I had a telehealth call with my local hospital, and I had to give up when after explaining these symptoms, and that I have been diagnosed with Oral Lichen Planus and that I feared it has spread further - the doctor declared " never heard of it".
Such is the level of understanding here.
Thanks
Thank you for sharing your experience @2thfairy. My only concern is that, given my OLP, I won't get the same results of reattachment that most people do. I appreciate your comment!
@sillyduffer I'm sorry you are experiencing that in your esophagus. There are other responses here that mention that. If you are close to a dental school, I think I'd start there. It is so rare that doctors may not have seen it. They may even be able to refer you to an internist who has knowledge. I hope you find someone to help you.
Hi, honestly speaking, If you were to talk to any physician about this I will tell you they don't know. This is uncharted territory. My case is very rare according to research.
I'm thinking how I might be able to help you. I will tell you how it all began with me. I noticed some swallowing issues. Certain things I ate wouldn't go down well. I ignored it. I began to notice random red bumps appearing on my thighs. I brushed it off as too much sun exposure. I only had a handful of them. After some time I developed a yeast infection in my mouth. It wouldn't go away after using a few different medications. Then it spread into the corners of my mouth, yuck!
I was referred to a Gastroenterologist who insisted on looking into my esophagus. I was diagnosed with ELP. It was obvious I also had OLP and LP on my skin.
I live in a smaller town north of Seattle near the Canadian border. I'm incredibly fortunate to have an amazing Gastroenterologist. He is young and very knowledgeable. He sincerely cares about me.
He went to a big out of state convention on my behalf in hopes to meet another specialist with a patient like me. There was not one there. This is so rare.
I live 90 minutes from the University of Washington and all of the big research hospitals. There isn't a specialist in the area to recommend.
When swallowing gets really challenging for me my doctor will get me in quickly to try and stretch my esophagus a bit in the surgery center.
I wish you could see my doctor. I can't believe how fortunate I am to have him.
If he moved I would move to the same place. I would be frightened without him.
If you want to contact me via Email or something I'm happy to help you. Honestly, if you traveled to see my specialist you are welcome to stay at our house.
We live in the beautiful Pacific Northwest next to the saltwater and the Islands people travel miles to visit. We live in a little piece of heaven, Bellingham, WA.
Take care, I'm here for you ❤️
I also have it in my esophagus . Long story to go with it. I pray that you have good luck in the treatment they do.
You are unbelievably kind to offer such a safe haven.
But, I live in Queensland - Australia. Too far away for both the doctor and your home.
I will persist.