Optimism

@ericmm
Hi Eric - My Idiopathic PN (large fiber) comes with pain, and extremities can get very cold (sometimes very warm). It was a very sudden onset (10 days) with an infection. I initially lost all ability to walk and the use of my hands, but PT did wonders getting me out of the wheelchair and getting pretty well balanced. I use a walker today and relieved for that. I am prescribed Gabapentin which I find, taken on schedule, works well to keep the pain very minimal now and keep temperature discomfort tolerable. I have found nothing though that helps the numbness and tingling!

I have tried many of the suggestions here for vitamins and supplements. Over time I found that the sweet mix for me is to take B12 and Magnesium supplements (and I’ve taken a One-A-Day multivitamin for years). I had to find the right dosages that worked for me, as too much (esp Mg) actually made me weak. What I’ve learned most on this forum is that there is no one formula that works for everyone. It takes a lot of trial & error! Debbie

@dbeshears1 thank you for your message, I took gabapentin 700 mg 5 times a day, stopped that switched to Lyrica 100 4 times a day, it really doesn't do anything for my shooting nerve pain to my feet, I started taking r-ala , after a couple weeks my nerve pain almost disappeared but now it has come back a little bit less than it was before trying some different ala , you are correct it's every person has a different story but a lot of good information thanks again and I hope you find something that helps

Regarding the use of vitamins and supplements, it really is an unknown area in terms of what is effective and what isn't. Plus, every individual is different. Some may suggest taking this, others suggest taking that. Here's my suggestion, do the research. Search a ton of sites by typing in something along the lines of "which supplements and vitamins are most effective in treating ......" Then, find the common denominator choices that seem to pop up in most of them. You'll most likely find a theme. Then, read up on each supplement or vitamin and decide if its something you want to explore.