CAR-T: Opportunity to Connect
Hello Car T Cell Therapy followers,
I just want to advise the followers of this group that I and others are out here ready to respond to any posts on this site.
I know it is a small group of followers on Car T Cell Therapy due to the narrow scope of this particular treatment.
If anyone out there wants to connect on this group for any reason, I encourage you to do so. There is usually someone not too far away that is more than happy do share a few kind words and some guidance.
Interested in more discussions like this? Go to the CAR-T Cell Therapy Support Group.
@rohitkachroo, it sounds like you or your loved one has triple negative breast cancer that has now metastacized to the brain (BM) and developed leptomeningeal disease (LMD). @grandpabob is correct that the use of CAR-T is still in the research stage for solid tumors.
I found this article
– CAR-T Trial for Triple-Negative Breast Cancer Under Way https://www.cancertherapyadvisor.com/home/news/conference-coverage/san-antonio-breast-cancer-symposium-sabcs/sabcs-2018/car-t-trial-for-triple-negative-breast-cancer-under-way/
Trials for CAR-T for TNBC are in early phases (phase 1) as yet.
Here is a recent article about promising research at Mayo Clinic for TNBC:
– Mayo researchers identify potential new treatment for subset of women with triple-negative breast cancer https://newsnetwork.mayoclinic.org/discussion/mayo-researchers-identify-potential-new-treatment-for-subset-of-women-with-triple-negative-breast-cancer/
You can find more clinical trials being conducted currently at Mayo Clinic for triple negative breast cancer here: https://www.mayo.edu/research/clinical-trials/search-results?keyword=triple%20negative%20breast%20cancer
Hello @rohitkachroo – Welcome to Mayo Clinic Connect. I hope someone on Connect can help you with your question. The Car T treatment I had was for large B cell lymphoma. I am not aware of Car T being used for solid tumors as that is my understanding of what you are asking, though treatments change continually.
I would suggest asking your heath care providers who should be able to provide some information and guidance to you.
Are you, or someone you know currently undergoing treatment?
Hi All – Wanted to learn if anyone has experience of CAR-T or similar in LMD & BM that has been our latest development post TNBC BRCA2 METS in the past- please advise and thank you in advance
Anybody has Richter's Transformation (a rare and very aggressive Diffuse Large B-Cell non Hodgkin lymphoma) with CAR T treatment? I'm in remission after targeted therapy. High risk for relapse so CAR T is the next treatment if relapse.
Hello Darrin, I am assuming you have completed your Chemo sessions at this time, i hope all went well for you. How are you feeling?
Do you have a date for the Car T treatment as yet?
Hello Darrin, I am so glad to hear you have a great support system, I found it so comforting to know that there was a group of people I could count on for help when I needed it which was often.
It is good that you have been advocating for yourself to get quicker action for your condition. When we are waiting for results and treatment, sometimes it seems there are as many twists and turns as a mountain road.
I wish you all the best during your Chemo treatments.
Please reach out at anytime.
Is your treatment centre a close to where you reside?
Thanks, Bob. I have a wonderful support system with a great wife and 3 grown daughters (2 with spouses).
I teach high school math, with no more than 3 classes per day. I’m not usually actively teaching more than 45 minutes to an hour tops per class. The rest of the day is spent one-on-one tutoring, grading, preparing future lessons, tests, etc.
My marrow biopsy finally came back and now the oncologist decided I need to be admitted tomorrow for 5 days of chemo. I think they had been treating this leukemia a little too casually from the blood tests, but now have gotten more urgent after seeing how rapidly it is spreading through the biopsy. I’ve been pushing for faster action all along as I remember how bad I got the first time. Hopefully I can get some more info on how the timeline for the T-cell therapy is coming along.
@dbthemathteacher – That is great news that the treatment is just around the corner. I am so glad to hear that you are well recovered and in a good position. Doing all you can now to stay strong, will leave you in a great spot for treatment in January.
I concur strong enough is a wonderful start after any treatment.
Do you have a strong support system for the first weeks after infusion?
Now I am just curious, how many teaching sessions do you typically have in a day? ( I take university classes but keep it to only one per day)
Have a great Day!
We are still in the insurance approval stage, but I am expecting to probably be in the hospital the first part of January receiving the T-cells back. I’m 54 and pretty well recovered from the BMT 3 yrs ago, so I’m hoping I’m strong enough to be back at the school in March. Even if not near full strength, at least hopefully strong enough to teach virtually.
Hello @dbthemathteacher – Welcome to Mayo Clinic Connect.
As someone who has received Car T therapy, I am happy for you that you have been scheduled for treatment, it can be very rewarding after going through many previous types of treatments.
From what I understand, the recovery time can differ greatly between patients, age, physical condition all play a part in the recovery I was told. I personally would not have been able to teach a class 2 months after treatment. (Though it would not surprise me if some have) I am from an older demographic however which can be a factor in speed of recovery. (I was still very weak physically and psychologically at that point)
I encourage others following this site to help you with information they can share of their experiences with Car T.
When are you scheduled for your infusion?
Keep in touch and take care.