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Only 53 with severe osteoporosis and about to fearfully take Evenity

Posted by songbird18 @songbird18, Feb 24, 2024

I am 53 and just got an awful bone density result. (Spine T score 4.1, hip 3.5). The rheumatologist is going to put me on Evenity for a year but I am so afraid after reading about the dangers of heart attack and stroke. The doctor also told me you can’t get any dental work done, but you never know when you are going to have a tooth emergency. I don’t feel I have a choice but to take it because my bones are so bad and my back is in constant pain. I’m wondering if anyone has been using Evenity and how it has affected them. Thank you!

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gravity3 | @gravity3 | Nov 20 9:21am
In reply to @dianat "These comments are very helpful. 58 yo with severe osteoporosis. I was worried when I found..." + (show)
Profile picture for dianat @dianat

These comments are very helpful. 58 yo with severe osteoporosis. I was worried when I found out about the cardiac side effects from Evenity but since I have no cardiac issues I think I will be ok. Just waiting to see if it's covered by insurance. Most posts are positive with no real side effects-very encouraging. My rheumatologist also told me that I will have to follow up with a 5 yr medication. She does not recommend prolia and I don't think I would want that after reading about it.
I am also going to begin hrt. I'm about 6 years post menopausal but they don't seem worried. I am deciding about the testosterone pellets or cream right now. Any advice on that?

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@dianat

I like the pellet approach. More convenient than patches and compounded creams.
I have a estradiol testosterone pellet inserted every 12 weeks. Medicare does not pay for that part of my bhrt and it is $375 each time. They do pay for my provider visits, progesterone and estradiol vaginal cream as well as blood tests.

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dianat | @dianat | Nov 20 3:49pm
In reply to @gravity3 "@dianat I like the pellet approach. More convenient than patches and compounded creams. I have a..." + (show)
Profile picture for gravity3 @gravity3

@dianat

I like the pellet approach. More convenient than patches and compounded creams.
I have a estradiol testosterone pellet inserted every 12 weeks. Medicare does not pay for that part of my bhrt and it is $375 each time. They do pay for my provider visits, progesterone and estradiol vaginal cream as well as blood tests.

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Thank you!

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dianat | @dianat | Nov 20 3:55pm
In reply to @steige "I am 55 and just found out I have poor bone density as well. I’m not..." + (show)
Profile picture for steige @steige

I am 55 and just found out I have poor bone density as well. I’m not going to take Evenity. Too many side effects. I have no back pain btw. Hoping to start strength training and keep walking.

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@steige
I really don't have back pain and have not broken anything. I work out already. I am about to start the Evenity (in December) plus HRT. I have read on this page that some people have terrible side effects and others have none. My rheumatologist said that the side effects are rare(?). Who knows but I am willing to take the chance. She is optimistic that the Evenity plus hrt plus the vitamins I am on will reduce my numbers. We shall see. It's all really scary, I agree.

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sl303 | @sl303 | 16 hours ago

my doctor wanted me on Evenity and that whole dental thing has scared me so far. you do just never know when you are going to have a tooth problem

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