1. < Head & Neck Cancer
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One Year Since Symptoms Started - 3 months Cancer Free

Posted by Julie H @jkhagen1, Sep 10 9:29pm

WOW! A year ago I started feeling stabbing pain in my ear which turned out to be SCC HPV base of tongue/tonsil. I was diagnosed at Thanksgiving, started treatment in late January and my June PET scan was clean. I'm really grateful to this community for all the virtual hugs, honest information, and support. I'm not a Mayo patient, but this forum has inspired me to try and start an in-person group here in San Antonio at Mays/MD Anderson. Please cheer me on -or if you're spiritual, please pray for me- tomorrow I'll ask my care team to help me get a group going.

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

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amadewell | @amadewell | Sep 12 11:06am

We all have our journeys in our lives with our 'Cancer-Treatments' that our FAITH has brought us through! GOD never said he would make it easy but only that he would get you through it. Without FAITH we would not made it through to today! Praise God by sharing your journey and letting others know of your FAITH! GOD Bless you and all others on their journeys!

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sandy8043 | @sandy8043 | Sep 12 7:21pm
In reply to @amadewell "We all have our journeys in our lives with our 'Cancer-Treatments' that our FAITH has brought..." + (show)
Profile picture for amadewell @amadewell

We all have our journeys in our lives with our 'Cancer-Treatments' that our FAITH has brought us through! GOD never said he would make it easy but only that he would get you through it. Without FAITH we would not made it through to today! Praise God by sharing your journey and letting others know of your FAITH! GOD Bless you and all others on their journeys!

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I used my radiation treatments to say my morning prayers. He comforted me throughout my entire cancer experience. My healing went well and my doctors and nurses remarked often on how well I was healing....we know why!

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kmlnj | @kmlnj | Sep 13 7:33am

So glad to hear you will work to help others. I agree this forum is essential to my well being. I am with MSK and they have nothing like this. You can reach out to the nursing staff and they are very skilled and caring.
I am sure we are all grateful for the teams that have helped us on our journey- from reception to nurses to radiation technicians and surgical teams. Thank the Lord for all of these wonderful people.

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Julie H | @jkhagen1 | Sep 13 10:21am

UPDATE: One of my doctors has agreed to move my proposal along through the system with his endorsement!

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Mentor
William Olsen, Volunteer Mentor | @hrhwilliam | Sep 15 12:09pm
In reply to @jkhagen1 "UPDATE: One of my doctors has agreed to move my proposal along through the system with..." + (show)
Profile picture for Julie H @jkhagen1

UPDATE: One of my doctors has agreed to move my proposal along through the system with his endorsement!

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Going through this cancer we tend to think we are a alone or just a small group. That is until we start to meet others at work, in town, at church, and even on-line. Myself in addition to this forum I also check in periodically with a Facebook group and with folks at my company who are or have loved ones going through this as well. I believe the medical community can do only about one-half of the care necessary for our cancer journey. Those who have experienced this from the patient's perspective is the other half. As my wife often says about MS, people don't get it until they actually get it. In other words no one (including doctors/nurses) understand what this is until they actually go through this themselves.
Good success with your group.

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sandy8043 | @sandy8043 | Sep 15 6:40pm
In reply to @hrhwilliam "Going through this cancer we tend to think we are a alone or just a small..." + (show)
Profile picture for William Olsen, Volunteer Mentor @hrhwilliam

Going through this cancer we tend to think we are a alone or just a small group. That is until we start to meet others at work, in town, at church, and even on-line. Myself in addition to this forum I also check in periodically with a Facebook group and with folks at my company who are or have loved ones going through this as well. I believe the medical community can do only about one-half of the care necessary for our cancer journey. Those who have experienced this from the patient's perspective is the other half. As my wife often says about MS, people don't get it until they actually get it. In other words no one (including doctors/nurses) understand what this is until they actually go through this themselves.
Good success with your group.

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I agree with you and your wife! I'm almost 2 years out from tongue cancer surgery, radiation and chemo. And I also have MS! Your wife is right. Every time someone says, "My friend has MS...but hers is not like THAT!". I say every person's MS is different. No two of us alike. Now that I've had tongue cancer I think its the same for that, too.

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