One year into adult brachial plexus injury

Posted by daltonmaxwell @daltonmaxwell, Jun 3 3:15pm

M22 had a dirt bike accident on may 17th, 2024. My spine was injured in multiple places ( Right c1 lateral mass fracture, and left c4, c5, c6 and c7 fractures along with a lot of the thoracic.) which has healed well enough but I also had a brachial plexus injury on my non dominant left arm. It has been a little over a year now and I’m losing hope and confidence in the handling of this situation, I have dexterity in my hand and progress has been hopeful there with 50lbs of grip strength coming back along with wrist mobility and even some forearm but no ability to rotate without leverage. As far as the arm and elbow/bicep go there has been almost no improvement in the ability to lift or bend it ( I can move it in the pool). Around the time the accident happened I didn’t get paired up with a consistent nuero who had any experience with this and I was just so grateful to be alive that I didn’t think too awful much of it and they did order a mri and ct scan which they said looked like it was a “stretched nerve” and explained it like insulated wire and it would grow back over time with pt. The thing that scares me more as I look into things is that a Emg or nerve test was never done on me and I’m beginning to wonder if a surgery of some kind would help bring my mobility back or what realistically would be the best path moving forward

Interested in more discussions like this? Go to the Neuropathy Support Group.

Any supplements/vitamins or anything that would help promote nerve growth would all be appreciated as well

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@daltonmaxwell
I’m sorry to hear of your accident/injuries. How old were you when this happened?

Have you recently had a MRI of your cervical and thoracic spine post surgery (assuming you had decompression/fusion surgery)? Have you read the report in detail?

Have you recently been to a neurologist for an EMG/nerve conduction study of your upper limbs? This can identify neuromuscular damage and isn’t there is a compressed nerve root and at what level.

You may have injured your spinal cord and nerve roots in the accident and may have new degeneration/compression since then. If your spinal cord is compressed in any way, you need to have it decompressed as soon as possible because cervical myelopathy spinal cord compression injury can cause permanent damage. If you have compressed nerve roots, you also need them decompressed.

Cervical spinal cord injuries causing cervical myelopathy may not heal but nerve roots may be able to heal if not severely damaged/severed in the accident or surgery.

You may want to look into a SSEP test and work with a nutritionist/dietitian on diet and supplements for nervous system support/nerve health.

1. https://www.sciencedirect.com/science/article/pii/S1878875018326524
2. https://www.cnsneurosurgery.com.au/brachial-plexopathy-versus-cervical-radiculopathy/
3. https://www.uclahealth.org/medical-services/neurosurgery/conditions-treated/brachial-plexus-injury
4. https://www.orthobullets.com/trauma/1008/brachial-plexus-injuries
5. https://www.frontiersin.org/journals/veterinary-science/articles/10.3389/fvets.2023.1260719/full
6. https://www.sciencedirect.com/science/article/abs/pii/S1878875018326524
7. https://www.mayoclinic.org/diseases-conditions/brachial-plexus-injury/doctors-departments/ddc-20350242
8. https://www.uclahealth.org/medical-services/neurosurgery/conditions-treated/myelopathy
9. https://wikism.org/Cervical_Cord_Neuropraxia
10. https://my.clevelandclinic.org/health/diagnostics/12393-evoked-potential-test
11. https://www.ncbi.nlm.nih.gov/books/NBK544358/
12. https://www.spine-health.com/treatment/diagnostic-tests/somatosensory-evoked-potentials-ssep
13. https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/sensory-evoked-potentials-studies
14. https://www.hexahealth.com/blog/best-food-for-nerves-repair
15. https://naturemed.org/natural-support-for-a-healthy-nervous-system/
16. https://scientificorigin.com/15-best-foods-for-nervous-system-support

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My case is pretty similar to yours. I had a motorcycle accident in April 2024 and ended up with a brachial plexus injury — C5 and C6 roots were avulsed, and C7, C8, and T1 were also badly damaged. I’ve had three surgeries so far, and C5 and C6 have been reconnected. It’s been about 9 months since the last one.

Right now, my wrist and fingers are functioning normally (just a lot weaker than before). Elbow flexion has come back a bit, but still far from enough. I still can’t abduct my shoulder when sitting or standing — only a little when lying down.

The worst part is the constant pain. I can only fall asleep with pregabalin, and even then it’s tough. Honestly, I’ve been close to giving up. It’s hard to see any light at the end of the tunnel.

If you’re open to it, I’d really like to stay in touch and share recovery updates. You’re not alone in this.

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Profile picture for icebear @icebear

My case is pretty similar to yours. I had a motorcycle accident in April 2024 and ended up with a brachial plexus injury — C5 and C6 roots were avulsed, and C7, C8, and T1 were also badly damaged. I’ve had three surgeries so far, and C5 and C6 have been reconnected. It’s been about 9 months since the last one.

Right now, my wrist and fingers are functioning normally (just a lot weaker than before). Elbow flexion has come back a bit, but still far from enough. I still can’t abduct my shoulder when sitting or standing — only a little when lying down.

The worst part is the constant pain. I can only fall asleep with pregabalin, and even then it’s tough. Honestly, I’ve been close to giving up. It’s hard to see any light at the end of the tunnel.

If you’re open to it, I’d really like to stay in touch and share recovery updates. You’re not alone in this.

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Hey nice to hear from you and I relate to this on many levels trust me it has been an extremely challenging thing to face.

I’m honestly still in the same place but I do have an appointment with Mayo Clinic in Florida at the end of September to have their team take a look at it and I’m very interested in what they have to say. Who has done your surgeries and I would like to know more about that as well.

I’ve been facing a lot of the struggles that you mentioned and I’m definitely open to keeping in contact however you like just let me know your preference. I’m on social media as well or if you know of any groups for folks like us I would join you in that also.

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Profile picture for daltonmaxwell @daltonmaxwell

Hey nice to hear from you and I relate to this on many levels trust me it has been an extremely challenging thing to face.

I’m honestly still in the same place but I do have an appointment with Mayo Clinic in Florida at the end of September to have their team take a look at it and I’m very interested in what they have to say. Who has done your surgeries and I would like to know more about that as well.

I’ve been facing a lot of the struggles that you mentioned and I’m definitely open to keeping in contact however you like just let me know your preference. I’m on social media as well or if you know of any groups for folks like us I would join you in that also.

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If you're open to it, feel free to add me on Instagram or X — I’d be happy to share more details about my treatment and recovery process.
I’ve also been trying to find a small group of people with similar injuries to connect and share experiences, but haven’t had much luck so far.
Would be great to stay in touch and support each other through this.
IG: @akrapovicccccccccc
X (Twitter): @scientia_cbr

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Profile picture for daltonmaxwell @daltonmaxwell

Hey nice to hear from you and I relate to this on many levels trust me it has been an extremely challenging thing to face.

I’m honestly still in the same place but I do have an appointment with Mayo Clinic in Florida at the end of September to have their team take a look at it and I’m very interested in what they have to say. Who has done your surgeries and I would like to know more about that as well.

I’ve been facing a lot of the struggles that you mentioned and I’m definitely open to keeping in contact however you like just let me know your preference. I’m on social media as well or if you know of any groups for folks like us I would join you in that also.

Jump to this post

I’d be happy to share more details about my treatment and recovery process.
I’ve also been trying to find a small group of people with similar injuries to connect and share experiences, but haven’t had much luck so far.
Would be great to stay in touch and support each other through this.

REPLY

I’d be happy to share more details about my treatment and recovery process. you can click on my profile
Would be great to stay in touch and support each other through this.

REPLY
Profile picture for daltonmaxwell @daltonmaxwell

Hey nice to hear from you and I relate to this on many levels trust me it has been an extremely challenging thing to face.

I’m honestly still in the same place but I do have an appointment with Mayo Clinic in Florida at the end of September to have their team take a look at it and I’m very interested in what they have to say. Who has done your surgeries and I would like to know more about that as well.

I’ve been facing a lot of the struggles that you mentioned and I’m definitely open to keeping in contact however you like just let me know your preference. I’m on social media as well or if you know of any groups for folks like us I would join you in that also.

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I’ve tried sharing my contact information a few times, but it seems the website keeps removing it automatically.
Maybe you could leave yours instead?
I’d really love to connect and share my treatment plan, and hear about your recovery progress too.

REPLY
Profile picture for icebear @icebear

I’ve tried sharing my contact information a few times, but it seems the website keeps removing it automatically.
Maybe you could leave yours instead?
I’d really love to connect and share my treatment plan, and hear about your recovery progress too.

Jump to this post

@icebear, it appears that your message were being identified as spam. Sorry about that. We do not recommend sharing personal contact information on the public forum. It is safest to share personal contact information using the secure private messaging function. You will be able to private message in a few days as a new member, but you can receive PMs from members.

I'd also like to point out that by sharing here in this discussion, you are not only helping each other, but other members as well. We learn and heal better together. 🙂

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Profile picture for Colleen Young, Connect Director @colleenyoung

@icebear, it appears that your message were being identified as spam. Sorry about that. We do not recommend sharing personal contact information on the public forum. It is safest to share personal contact information using the secure private messaging function. You will be able to private message in a few days as a new member, but you can receive PMs from members.

I'd also like to point out that by sharing here in this discussion, you are not only helping each other, but other members as well. We learn and heal better together. 🙂

Jump to this post

Thank you for the reminder, and I’m sorry — I wasn’t familiar with the site’s moderation system.
I did try to use the messaging function, but I couldn’t seem to find where to send a private message.
I appreciate your clarification!

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