Oncotype Test

Posted by foreverfaithful0925 @foreverfaithful0925, Aug 23 10:44am

Hello,

I just had my first appointment with the medical oncologist this week. I have IDC stage 1a, and had lumpectomy (that’s how they found out mine was invasive originally they said it was DcIS stage 0). No lymph node involvement.

The invasive cancer was only 2mm, so the oncologist said that I will not qualify for Oncotype test since it is extremely small and they only test if it is more than 5 (but my brain cannot remember if it was mm or cm!)

Anybody had same experience or shall I push for the test outside of my insurance (I am with Kaiser)? I did qualify for genetic testing so I am taking the blood draw tomorrow.

I will be doing radiation and will be on Tamoxifen .

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Push for the ancotype. My ancotype was done with my very first biopsy and my summer was only 1.8 cm very very tiny. They did every single test they suppose to. The oncotype will give you the % of the effectiveness of chemo will be in your particular cancer. Also the % of the likelihood for reoccurrance.

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@claudiaovando1

Push for the ancotype. My ancotype was done with my very first biopsy and my summer was only 1.8 cm very very tiny. They did every single test they suppose to. The oncotype will give you the % of the effectiveness of chemo will be in your particular cancer. Also the % of the likelihood for reoccurrance.

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Thanks. I think @angiemal mentioned that they don’t test if they are less than 5mm, which is what my onco said as well. Mine is 2mm, so very little. My onco said even if we try to submit it it will get kicked out of eligibility.
I’ll continue researching as well.

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@celestebradham

Mine was 1.9 mm and was told so small they couldn’t do an onco test. I also had DCIS grade 1 4cm.
You should be able to get a paper copy of your report( so hard to read though)I made a notebook and filed everything

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Yes I did get the paper copies of my pathology results (from the lumpectomy and sentinel lymph node biopsy).

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@foreverfaithful0925

Thanks. I think @angiemal mentioned that they don’t test if they are less than 5mm, which is what my onco said as well. Mine is 2mm, so very little. My onco said even if we try to submit it it will get kicked out of eligibility.
I’ll continue researching as well.

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Your oncologist is correct. They won't accept anything under 5mm.

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I was not unhappy to miss having chemo, because, IMHO, all of the "protective" things I have done post the surgery have been worse than the surgery itself. I was not offered any test that would involve additional expense, which, according to my radiologist, was the hallmark of the Illinois oncologist. Perhaps I can give you another story of his methods involving a woman I knew well, Diana. I had all 3 of her daughters as students in 7th and 8th grade and then hired them to work for me at my business. Diana had the same oncologist (not very many to select from in this rural area) and was fine for many years when it reoccurred. She felt something was "off" in her body, but our mutual oncologist refused to run the test that would either prove or disprove her fears. Her daughters, who wanted to try to save her life, wanted to take her to the Mayo Clinic. He said, to them, "Why do you want to take her there? I interned there. I know everything they know." And he refused to give up her tumor (on ice from her original surgery), which is against the law. When the girls continued to request all information so that they could take their mother elsewhere, he became irritated and said, "I need therapy after I talk to you three." He finally ran the test, which determined that her cancer had recurred and traveled to her pancreas. He bombared her with intensive chemo, which simply made her weak and worse. She died in hospice. When they heard he was MY doctor, they said, "He killed our mother."

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@einnoc

I was not unhappy to miss having chemo, because, IMHO, all of the "protective" things I have done post the surgery have been worse than the surgery itself. I was not offered any test that would involve additional expense, which, according to my radiologist, was the hallmark of the Illinois oncologist. Perhaps I can give you another story of his methods involving a woman I knew well, Diana. I had all 3 of her daughters as students in 7th and 8th grade and then hired them to work for me at my business. Diana had the same oncologist (not very many to select from in this rural area) and was fine for many years when it reoccurred. She felt something was "off" in her body, but our mutual oncologist refused to run the test that would either prove or disprove her fears. Her daughters, who wanted to try to save her life, wanted to take her to the Mayo Clinic. He said, to them, "Why do you want to take her there? I interned there. I know everything they know." And he refused to give up her tumor (on ice from her original surgery), which is against the law. When the girls continued to request all information so that they could take their mother elsewhere, he became irritated and said, "I need therapy after I talk to you three." He finally ran the test, which determined that her cancer had recurred and traveled to her pancreas. He bombared her with intensive chemo, which simply made her weak and worse. She died in hospice. When they heard he was MY doctor, they said, "He killed our mother."

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Disgusting.

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@einnoc

I was not unhappy to miss having chemo, because, IMHO, all of the "protective" things I have done post the surgery have been worse than the surgery itself. I was not offered any test that would involve additional expense, which, according to my radiologist, was the hallmark of the Illinois oncologist. Perhaps I can give you another story of his methods involving a woman I knew well, Diana. I had all 3 of her daughters as students in 7th and 8th grade and then hired them to work for me at my business. Diana had the same oncologist (not very many to select from in this rural area) and was fine for many years when it reoccurred. She felt something was "off" in her body, but our mutual oncologist refused to run the test that would either prove or disprove her fears. Her daughters, who wanted to try to save her life, wanted to take her to the Mayo Clinic. He said, to them, "Why do you want to take her there? I interned there. I know everything they know." And he refused to give up her tumor (on ice from her original surgery), which is against the law. When the girls continued to request all information so that they could take their mother elsewhere, he became irritated and said, "I need therapy after I talk to you three." He finally ran the test, which determined that her cancer had recurred and traveled to her pancreas. He bombared her with intensive chemo, which simply made her weak and worse. She died in hospice. When they heard he was MY doctor, they said, "He killed our mother."

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How are these doctors still practicing?! That is my fear. I know that we can’t cover everything, but at least live up to your oath to treat your patients to the best of your ability.
At the same time, there’s so much information out there it’s hard to weed things out. I’m glad to have found this website at least I can read some of your experiences.
I hope Diana’s family find some peace after what happened to their mom.

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@claudiaovando1

Push for the ancotype. My ancotype was done with my very first biopsy and my summer was only 1.8 cm very very tiny. They did every single test they suppose to. The oncotype will give you the % of the effectiveness of chemo will be in your particular cancer. Also the % of the likelihood for reoccurrance.

Jump to this post

My ILC tumor was only a 1.2 cm size and the Oncotype test was done without me asking. Based on that information, I have ruled out chemo as well as AI. I am doing the Fast forward radiation of 5 days only since I only need to worry about local recurrence not distant.

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I am so sorry that you had to experience all that, and in a span of a few years!! I am sure your stress level was through the roof, on top of dealing what you actually need to treat.
It makes me so mad that there are people like that. I do believe in karma so in some ways it’s gonna come back to them.
I am glad too that you have finally found a Dr you are comfortable with and at least listens to you. I always make that to a point as well. I ask way too many questions and see if these drs are patient enough with me or just want to get the answers blurted out. So far I am comfortable with them.
Best of luck and will be praying for you.

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@kaykerz

My ILC tumor was only a 1.2 cm size and the Oncotype test was done without me asking. Based on that information, I have ruled out chemo as well as AI. I am doing the Fast forward radiation of 5 days only since I only need to worry about local recurrence not distant.

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How do you know that you only have to be concerned about a local recurrence. My tumor was 1.6 cm IDC. Thanks.

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