Anyone feel devasted about how you look & feel? And guilty too?

Posted by colely @colely, Jan 23, 2023

My Oncologist's reply to my wanting to take Propecia for genetic, and Tamoxifen- induced hair loss and thinning was the following: "This is controversial. There is no data that says it is safe and it could be potentially harmful, ( increased breast cancer risk). We are not in favor of using propecia." Well, there is always a capillus cap. If I had the money. Do any of you feel devastated by how you physically feel and now look from a masectomy and sentinal lymph node removal, and taking Tamoxifen, but feel guilty because other wonderful women are suffering so much more?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Randy 36 | @randy36 | May 17, 2023

I am so sorry you are experiencing these feelings of sadness over how your body has changed. This issue is something not spoken about much. Outsiders inadvertently can cause guilt feelings for that loss of vanity feelings. I think we struggle with seeing the glass half full rather than half empty. You are going through a period of grieving. Your body that holds your life has changed drastically for so many reasons. You will go through all stages of grief... " through" is the keyword. There is a light of self-acceptance you will feel at some point in your journey. Yes, of course, you should always count your blessings but these experiences are so normal. I wish you good health and healing.

Chris, Volunteer Mentor | @auntieoakley | May 16, 2023

In reply to @celica "Thankyou" + (show)

You got his❣️

celica | @celica | May 16, 2023

Thankyou

celica | @celica | May 16, 2023

In reply to @auntieoakley "OMG❣️ You have gone through so much already and still standing. Take a bow, because you..." + (show)

This Friday
Just got a buzz cut fr my waist length hair
Taxol & Adriamycin
And picked up some protein powder
Gotta power through this 🙁

Chris, Volunteer Mentor | @auntieoakley | May 16, 2023

In reply to @celica "I got necrosis Lost bld supply during lumpectomy Took out huge margin as results weren’t back..." + (show)

OMG❣️ You have gone through so much already and still standing. Take a bow, because you are indeed a hero to all that come after.
I remember being scared spitless before chemo, and having the nurse tell me everyone is different but no real straight answers wasn’t really helpful.
Although she did tell me that because of one of the drugs my hair was absolutely coming out.
I was told that when you shave it it gets really itchy when it comes out, so I cut to one inch, donated my locks to wigs for kids, and dyed the rest pink. 😂
Chemo was hard, but not as hard as I imagined, I suffered through the hardest days mostly because of nausea, and made up for it the rest of the time.
You got this, and you have Mayo Connect to help you through it.
When is your first treatment? Do you know which drugs you are taking yet?

celica | @celica | May 16, 2023

In reply to @celica "So many emotions Be with us for the rest of our lives Do t understand other..." + (show)

I got necrosis
Lost bld supply during lumpectomy
Took out huge margin as results weren’t back fr the MRI - just found it by chance
Had a negative pressure on twice
Wound had to be packed for about 3
Weeks Got
Am infection was in IV antibiotics for 2 wks and 3
Oral
Areola looks like a saucer and
Larger weird
Looking
Nipple
Still hardened I had my surgery in May so maybe will fill in a little Coukd
Get a tat later I suppose
I am cancer free but
My ONCO test was high so now I have to go for chemo
Scared shitless
Should I cut
My hair
Now?

celica | @celica | Feb 15, 2023

In reply to @leeann66 "Don’t leave the group or stop posting, your posts are positive and show us what a..." + (show)

So many emotions
Be with us for the rest of our lives
Do t understand other than the expense why PET Scans aren’t ordered
Anybody’s nipple
Get necroses
How can u tell if I’m going to lose it
What options are there
I’m depleted with all the tests and surgeries
Just waiting for
My lymph results
Thank all of u so much

leeann66 | @leeann66 | Feb 14, 2023

In reply to @bcwarrior "@colely Please accept my apology. That's it I'm in the time-out chair indefinitely. Not planning to..." + (show)

Don’t leave the group or stop posting, your posts are positive and show us what a warrior you are! We post here to sometimes vent - and we are allowed - to get support from
Others in similar situations and to ask advice . And you post to offer support and give advice, not knowing the full story of the other person, you know only what they have shared!

Thank you for all your input and positive posts!

drummergirl | @drummergirl | Feb 13, 2023

In reply to @bcwarrior "@drummergirl Hi nice to meet you, I too have no boobs as of 05/2022 and lost..." + (show)

Bcwarrior- you are a valued member of this group. Please come back and share with us again.

dlmdinia | @dlmdinia | Feb 13, 2023

In reply to @bcwarrior "@colely Please accept my apology. That's it I'm in the time-out chair indefinitely. Not planning to..." + (show)

Do not leave, please. I once had someone totally misconstrue (and misread) something I posted who then lit into me. There will always be the occasional misunderstanding or even overreaction because everyone here is in various stages of hope and/or despair (and frustration). And we have good days and bad days and sometimes say things we don't mean and regret, or we just say them in a way that is misunderstood. After I was attacked, I felt like you and dropped out for a bit. I've since resumed posting (here I am), and have gotten many "likes" and "helpful"s. So believe, everyone here has value. No one is perfect, especially with the challenges we face daily. So, stay.