Once on Tymlos, how often are you tested for calcium, vitamin d etc?

Posted by bluebonnet242 @bluebonnet242, Jul 17 12:30pm

Does your endo or pcp monitor these tests? How often does your endo do follow up appointments? Thanks!

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My endocrinologist does cmp, vit D, PTH every 6 months. She doesn’t do bone markers in my case because we know that Tymlos is necessary given my 2 spontaneous fractures while on Prolia. Will monitor with Dexa results. I’m on Medicare which allows Dexa every two years she has ordered one between testing periods with specific coding language so fingers crossed Medicare will pay. Test will also fall around my 18 month of Tymlos treatment so am hoping results are positive.

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@ymv

My endocrinologist does cmp, vit D, PTH every 6 months. She doesn’t do bone markers in my case because we know that Tymlos is necessary given my 2 spontaneous fractures while on Prolia. Will monitor with Dexa results. I’m on Medicare which allows Dexa every two years she has ordered one between testing periods with specific coding language so fingers crossed Medicare will pay. Test will also fall around my 18 month of Tymlos treatment so am hoping results are positive.

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Thanks. It sounds like your tests are similar to @gently and @windyshores. That must be the norm. I’m thinking positive thoughts for you that your dexa is covered and that the results are amazing!

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We have to be careful about the vitamin D because too much of it is not good for your bones too little of it is not good for diabetes post menopausal women have to be monitored for their vitamin D and their A1c together. Vitamin D and A1c together tell you if you’re prediabetic or diabetic. So far, my vitamin D hasn’t changed with the Tymlos. I am 67 years old and I am on 5000 units a day. My Enric and doctors were aware of the issue with too much vitamin D in conjunction with the medication and they tested me. I would think that twice a year is appropriate to be tested I always know when my vitamin D is low because I get a little depressed in the morning And then I remember I didn’t take the vitamin D. It really is a mood changer for me. My father also was on vitamin D. If you have when you get older, your body can’t make the vitamin D it needs because the color of your skin will interfere so post menopausal women With all of complexions probably should consult their doctors if they aren’t on any vitamin D whatsoever. It is pretty standard protocol these days. 10 years ago when my D was low borderline 30 my doctors at Ucsd dismissed it, but my A1c was high so I looked it up and it’s a prediabetic condition so I brought them the research and they put me on the vitamin D. My vitamin D hangs out around 52 to 62 and my A1c dropped to 4.8 and I am no longer prediabetic , I started on 1000 units and now I’m on 5000 units .

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