On hydrea for a week already

Posted by roseneu @roseneu, Aug 19 8:56am

Hello all,
I Just wanted to share with you that I have been on hydrea 500mg daily for about a weak already, no symptoms from Hydrea yet, and hope not.
I made it, thank you for your advices.
So far I can see the burning feet symptom is getting better.
I Don’t feel that tired like before, maybe because now I know to do just small thing at a time, eat well and rest enough.
Even though I still have couple of unrelated to ET symptoms to be checked, but the fear of stroke was off of me.

Have a good day,
Rose

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Lori, Volunteer Mentor | @loribmt | Aug 19 6:31pm

This is great news, Rose. I’m happy to hear you’re doing so well with the Hydrea and some of your symptoms are getting better! That’s a win/win! I know no one really likes to take meds, but when the benefits outweigh the risk of having stroke…makes it worth trying!
Thanks for sharing your positive news! When’s your next followup appt?

roseneu | @roseneu | Aug 19 8:57pm

Hi Lori,
I was so afraid of taking Hydrea but yours and other people advices helped me decide to take it. Also, like you said, we don’t want to live in fear, fear of having a stroke.

I will have a blood test every two weeks starting next week. Will see the hematologist/oncologist in a month.
Rose

nohrt4me | @nohrt4me | Aug 20 7:38am

Glad to hear you are not having problems with the HU. Fingers crossed for your blood test!

abbyvoice | @abbyvoice | Aug 20 1:19pm

I’ve been on hydroxyurea for over 3 years.

roseneu | @roseneu | Aug 20 6:31pm

In reply to @nohrt4me "Glad to hear you are not having problems with the HU. Fingers crossed for your blood..." + (show)

Thank you!

roseneu | @roseneu | Oct 5 10:37am

Hello all!
Hopefully you are doing ok.
I’ve been on Hydrea 500mg one a day, everyday, 7 days a week starting mid of Aug, the plate counts was down from 939 to 717 , after about a month then I was on 2 hydrea 500mg on every 2nd day, other day is 1 500mg, as my doctor wanted the platelet level down to normal. Just had a blood test last week and it was 399. My hematologist said he and I have the same chance of getting this ET, it was not because I used to use Vim for cleaning, or exposed to gasoline, laundry , cosmetic…etc….products.
Most of the symptoms I have had were getting lot better: red feet, tingling feet, off balance, tiredness, non tasting tongue. I gained weights, not much, as I ate more and used enough energy that I had, rested when I needed it.
I hope my update would help as this room, the people, the information did and will really really help me. Thank you all very much.
You all have a good day.
Rose

roseneu | @roseneu | Oct 5 4:07pm

Also, Have had hydrea for almost 2 months, so far I have not had any symptoms from it.
Rose

Please sign in or register to post a reply.