Ongoing night sweats and migraines. Why? What do I do?

Posted by kezza825 @kezza825, Aug 19 3:49pm

I'm a 23 year old female,
since the age on 15 I've suffered from debilitating migraines. They used to happen daily, I then started propranolol and would just get the occasional migraine. At the time I had a non contrast CT of my brain where they saw nothing of concern. In 2023 I started getting severe night sweats. I would wake up absolutely drenched in sweat, my hands would be wrinkly and I'd have to change the sheets overnight. I went to my doctor numerous times and had my cortisone checked. it came back normal. I also then had a contrast MRI scan from my shoulders to my pelvis. Again, nothing showed up. 2025- now I've only had them randomly but they have recently started happening more frequently again. For the last 1.5 years I've had near weekly episodes of vomiting often with a migraine but not always. These episodes can last hours-days and are debilitating. I have to lay on a hard floor and not move an inch. Breathing too hard causes me to vomit, moving, swallowing my own saliva, it's brutal. I have numerous anti-nausea and migraine medications but I often can't keep them down long enough for them to work (suspected to be triggered by stress but thought I'd include it anyways). In 2024 I found out I had Wolff Parkinson white syndrome and 6 months later I had an ablation (the propranolol masked my symptoms until I stopped taking it).
Since December 2025 my TSH levels have been nearly non existent at 0.06 with my free T3&T4 being in the normal range but higher end of normal.

Can anyone please help suggest what I should do next or what could be going on? None of my doctors have been able to provide me with any answers.

Interested in more discussions like this? Go to the Headache & Migraine Support Group.

fourleaf | @fourleaf | Aug 20 12:54pm

@kezza825
So sorry to hear what you are going through.
Here are things my doctors have tried…
Little improvements but the side effects caused more problems.
Pills - Topamax, Propranolol, Ketorolac,
Self-Injections - Ajovy, Emgality - calcitonin gene-related peptide (CGRP)
Hospital IV Infusions - Migraine infusion - 1st five prescriptions mixture, 2nd stronger eight prescriptions mixture (very strong but provided little timewise help).

Hospital Vyepti infusion 100mg finally broken through - once every 3 months. Insurance required 3 Vyepti 100mg infusions before getting the 300mg. The 1st 100mg infusion was wonderful, the 2nd 100mg not so much, the 3rd 100mg better, the 4th 5th 6th at 300mg wonderful. The 300mg greatly reduced the migraine for a longer time period and intensity (Stabbing, Throbbing, Auras Nausea were greatly reduced if not gone).
Also, my Neurologist notice I have a very tense neck. Prescribed Physically Therapy- Dry Needling (Think acupuncture with low electricity.) First session - Wonderful!!! First time in 4 years no headache or migraine - the effect lasted 4 hours. With weekly session, the time became greater. After 9 months, I was able to go to monthly session. PT also gave me stretching exercises to do at home which also helps.

Nausea/ Upset stomach - I use Baking soda. It can provide rapid, short-term relief for an upset stomach or heartburn by "neutralizing excess stomach acid" within minutes. (BUT acid doesn’t cause all kinds of indigestion, so if your symptoms don’t improve, call your doctor.) It is effective for occasional symptoms but is not a long-term solution and carries significant risks if used improperly.

- I use Bob's Red Mill Premium Baking Soda - "aluminum-free" (Doctor's recommended).
Key Differences - Bob's vs A&H
Sourcing & Process: Bob’s Red Mill uses natural mining (nahcolite) with minimal chemical intervention, whereas Arm & Hammer uses a chemical conversion process (trona to soda ash to sodium bicarbonate), though both start with natural mineral deposits.
Plan I follow - occasional use - dissolve 1/2 teaspoon of baking soda in a full glass of water (at least 4–8 oz). Adults should take this dose 1–2 hours after meals on an empty stomach, not exceeding 7 doses in 24 hours or using it for more than 2 weeks without consulting a doctor.

WPW syndrome - abnormally fast heart rate. Wow, that's scary.

Try to find the positives every day. If it’s raining - the rain is filtering the nasty allergens/ pollens out of the air (tornados also filter the air).

These have helped my many puzzle pieces of issues. I update all of my Support System Doctors via MyChart Message and at the face to face appointment. (Yes, they can see all the tests results across all the Hospital System providers (8 now) – but their time is extremely tight.

Best wishes,
🍀

gwenrn74 | @gwenrn74 | Aug 20 2:55pm

I always try acupuncture and Qi gong. I can go to a school of acupuncture for cheaper sessions. I would go at least 9 -12 times. It's not a one poke wonder, ( that's pregnancy) !

zachary777 | @zachary777 | Aug 20 9:17pm

So sorry you’re going through this - it must be terrible. Based on your post, the most concerning thing is your super low TSH. This usually means hyperthyroidism, which can cause things like heavy sweating. I’d check to make sure you don’t have thyroid storm or something serious near your hypothalamus or pituitary gland. As for the headaches, I’d try a CGRP antagonist like Qulipta, Ubrelvy, or Vyepti. Physical therapy can also do wonders when done with a headache specialist, as it focuses on your head and neck muscles and any tension they may be carrying. If you have more questions let me know. I hope you get some answers and feel better soon.