Ocular Migraine? Aura without headache?

Posted by esikora @esikora, May 24, 2023

Anyone else experience aura without headache? Please share. Thanks.

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Profile picture for mikayla @mikaylar

Have you had MRIs and Scans of your brain? I get auras sometimes 2x week, but I already have the migraine that is persistent now for 6 years every day/all day.

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No MRI as what I go through is classic and fortunately for me no pain, just annoying and relatively short lived. If the frequency continues as it is I will seek more attention.

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Profile picture for jeffelmer @jeffelmer

As far as I know it is the classic aura associated with migraines without pain. A C-shaped expanding shimmer lasting in my case 29-25 minutes. Had them now for about 10 years, lately more frequent (12 in the past 7 months) but I have been actively trying to lose weight and exercising a bit more.

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Have you had MRIs and Scans of your brain? I get auras sometimes 2x week, but I already have the migraine that is persistent now for 6 years every day/all day.

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Profile picture for mikayla @mikaylar

Are you sure it's a migraine?

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As far as I know it is the classic aura associated with migraines without pain. A C-shaped expanding shimmer lasting in my case 29-25 minutes. Had them now for about 10 years, lately more frequent (12 in the past 7 months) but I have been actively trying to lose weight and exercising a bit more.

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Profile picture for esikora @esikora

Very frustating having to guess at triggers. Early this Spring, I had it happen two days in a row (a first) and could only figure it was changes in air pressure.

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I guess it will be individually specific triggers but I think that out there somewhere is someone who has a trick to at least help us avoid the aura or maybe cut them off or shorten their duration. I am lucky that there’s no pain associated but they are still annoying and when more frequent a bit worrisome too. Thanks for the reply

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Are you sure it's a migraine?

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Very frustating having to guess at triggers. Early this Spring, I had it happen two days in a row (a first) and could only figure it was changes in air pressure.

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I see a few remedies and most are only stating what we all know, we had the first one, it scared us but resolved in a few minute to an hour and we have had them off and on for years afterwards with varying frequencies with little or no ill effects except the loss of vision. My question is with so many of us experiencing this (aura with no pain) why no effective way to deal with it??? All I see is dark, quiet, compresses, drink something (maybe caffeine?) and wait. I keep a diary and have failed to recognize any trigger. Maybe for me it is MSG but just a guess. I had thought sleep and stress but had one today and neither of those were issues for me but maybe it is latent??? HELP us figure this out. Thanks

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @pfrjr78 - interesting about the tablets and nasal spray to treat the onset of aura. Which ones did the neurologist prescribe?

What did your neurologist share about why they suggested a visit to the ER if the aura lasted more than 60 minutes and how the ER might intervene if this were the case?

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I suffer infrequent ocular migraines with headaches. As soon as I detect one coming on i.e. vision begins to blur/swirl, I drink a full glass of water. This stops it within a few minutes and all returns to normal. I learnt this remedy from a friend. hope it can help others

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I usually get the aura and other symptoms without the headache, though mine have pretty much stopped in my older age. I have only had a a headache with my aura symptoms a few times in my life, thankfully!

After the first few times I experienced aura, I got scared and saw an eye doctor. (Ophthalmologist, not Optometrist) and that doctor diagnosed me with migraine without aura.

Mine would seem to come out of nowhere at times, but other times, they started after bright light hitting my eyes, looking at certain patterns (like small houndstooth and certain striped patterns (black & white, dark blue& white), and even looking down onto a driveway that was covered in pink & white petals from a tree).

They would usually start as a sort of white area in my eyesight, usually on one side of an eye, then after a few seconds, the squiggly lines would appear and move around my field of vision. Sometimes it would remind me of a mirage, other times like a kaleidoscope. They would normally last anywhere from about 15 minutes to an hour or so.

I often also experienced smelling things that no one else could smell. Sometimes this would start before the aura, so after a while, if I started smelling someone odd, I would gear myself up for a coming aura. I smelled weird things, such as wet garden dirt, fruit loops, and cotton candy, and the scent was very strong. Sometimes the scent would disappear once the aura started, other times, I think I might have had auras with only the scents.

I would get nauseous, but not all the time.

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Profile picture for pfrjr78 @pfrjr78

Gave samples of tablets and sprays: Rimegepant and Zavegepant.
I had a very lengthy and informative first visit, thoroughly covering numerous items related to my over 60 yrs of headaches and including much about auras. She did not share why the ER visit nor ER treatment but asked considerable questions about nature, durations, etc. about my auras that i have been having over 15 yrs.

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Very concerning and unexpected bad news. After a very encouraging only visit with my Neurologist that I would get some help. Unfortunately after completing an MRI of the brain yesterday and lab work related to inflammation I learned today that she was leaving the office in less than a week. It's been a long time and another long wait I'm afraid

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