Occipital Neuralgia: What treatments work for you?

Posted by jmb73 @jmb73, Sep 11, 2019

I have been having headaches on one side of my head and have recently been diagnosed with occipital neuralgia. They recommend a nerve bloc but I wonder anyone else has this and how they handle it.. I don't want a nerve bloc. The headaches are usually mild but occasionally the pain wakes me up. They got worse after I had my Gamma surgery. Any ideas would be appreciated. Thank you.

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Profile picture for irr4et @irr4et

I am sorry - i was mistaken re my my mild pain comment. I just got u confused with someone else.

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My pain is intense and agonizing twenty four hours a day and I’m severely sleep deprived and sweating profusely and soaking wet from nerve damage which also causes excessive itching and I’m scratching off all my skin.

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Profile picture for irr4et @irr4et

I am sorry - i was mistaken re my my mild pain comment. I just got u confused with someone else.

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@irr4et that's okay! It's not a contest 🙂

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Profile picture for foxylloyd @foxylloyd

My pain is severe and agonizing

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I am sorry - i was mistaken re my my mild pain comment. I just got u confused with someone else.

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According to my studies I am opioid intolerant.

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Profile picture for irr4et @irr4et

You said ur pain is mild so I would do nothing except con’t with PT and avoid spicy foods, citric acid in supplements, vinegars, caffeine, chocolate and any food or substance that you notice makes the nerve start hurting. I’m winter protect the nerve from cold air.

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My pain is severe and agonizing

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Profile picture for irr4et @irr4et

It felt like it had scalded my nerves. I have had Fibromyalgia 22 Yrs and I’ve read that everyone with it has food and chemical sensitivities. That includes food additives, certain foods, injections, creams and inhalants. So that would be why ppl like me have blogged that lidocaine injections hurt the nerves permanently, esp in winter. Lidocaine may not bother your pain level if u are not sensitive to it.

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The lidocaine IS what caused the intensity of pain. My doc just won't recognize it. I wrote about this above.

I am sensitive to meds, foods, chemicals so perhaps that explains it.

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Profile picture for windyshores @windyshores

irr4et I didn't say my pain is mild and wish it were. My neuro says that if lidocaine leached it would help not harm. Can you share info on lidocaine damaging tissues and nerves? I believe neuro is protecting his practice. I like him and have no intention of accusing them of anything but I need info for myself.

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It felt like it had scalded my nerves. I have had Fibromyalgia 22 Yrs and I’ve read that everyone with it has food and chemical sensitivities. That includes food additives, certain foods, injections, creams and inhalants. So that would be why ppl like me have blogged that lidocaine injections hurt the nerves permanently, esp in winter. Lidocaine may not bother your pain level if u are not sensitive to it.

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Profile picture for irr4et @irr4et

You said ur pain is mild so I would do nothing except con’t with PT and avoid spicy foods, citric acid in supplements, vinegars, caffeine, chocolate and any food or substance that you notice makes the nerve start hurting. I’m winter protect the nerve from cold air.

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irr4et I didn't say my pain is mild and wish it were. My neuro says that if lidocaine leached it would help not harm. Can you share info on lidocaine damaging tissues and nerves? I believe neuro is protecting his practice. I like him and have no intention of accusing them of anything but I need info for myself.

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You said ur pain is mild so I would do nothing except con’t with PT and avoid spicy foods, citric acid in supplements, vinegars, caffeine, chocolate and any food or substance that you notice makes the nerve start hurting. I’m winter protect the nerve from cold air.

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Profile picture for irr4et @irr4et

Yes it does seem to be permanent bc lidocaine can damage nerves. It’s been 4.5 Yrs since I had the lidocaine injections in the occipital nerve area and I have not had any healing since then.

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@irr4et even though discouraging, your posts are helpful. I wrote my neurologist about this. He said pain management would do an epidural before ablation. To be honest I don't want anyone near me!!

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