nxp2 positive dermatomyositis

Posted by campergirl @campergirl, Apr 15 6:02pm

Been having issues for approx 4 years. Got really bad in July of 2023 after a 2nd bout of pneumonia. Finally diagnosed with nxp2 positive dermatomyositis in July of 2024. On prednisone and imuran. Have isd. had tachacardia. Got sepsis in Oct 2024 and came out of that with afib. Just seem to keep going downhill. Has anyone found anything that actually helps?