Normal pressure hydrocephalus (NPH) and dealing with work

I am retired, making my daily tasks easy since I can do as much or little as needed for home & garden upkeep. The hydrocephalus makes my legs feel weak, but I find that riding on our stationary bike for a few minutes each day helps with fatigue, balance & gait problems. Do you still work? What do you do for better quality of life?

I have a question for @ladylake , do you have a shunt? The neurologists I speak to do not call it hydrocephalus until you have a shunt they said. NIH called my situation acqueduct stenosis.

I enjoy gardening too, but I dont tolerate heat too well.

I do not have a shunt. Hydrocephalus was the diagnosis given after a brain MRI was performed at Mayo. I go back there next week for another consultation. Gardening is my favorite pass time when my energy allows. My new passion is creating miniature gardens with succulents.

I like gardening, it's cold out for sure, I've been painting the kitchen to keep busy .

We live in Florida & can Garden most all year. During the summer months I have to garden early in the morning or late afternoon. You must be feeling pretty energetic to be painting your kitchen. Where do you live?

Lisa, I have been spinning my wheels in the snow for far too long! My biggest challenge has been job hunting.

@stephenluptak - will you share more about how the job hunting has been going? I know that job hunting can be stressful at any time, but wondering if you are finding the normal pressure hydrocephalus is putting unique challenges or strains on that process?

I'll share that I have attempted to find appropriate employment in the spring, but I have suffered a psychosis they call it every fall when the weather gets hot
My pcp won't sign a form on a physical so I cannot attain certain management positions. I dont want to run a cash register. I have executive experience. So, I have SSDI, and my main role is to maintain my health and advocate for wellness and sanity for everyone.

I'm very sorry to hear about your primary care provider not being willing to sign a form on a physical and thus not being able to attain management positions, though that is your career background, @user_chdb5e8ac. How are you feeling about that?

Hi, @lady1lake - you mentioned going back to Mayo Clinic for another consultation following the MRI and diagnosis of hydrocephalus previously. How did things go?