Normal pressure hydrocephalus (NPH) and dealing with work

Posted by Paul_2001 @stephenluptak, Sun, Jan 27 10:08am

Many of you have responsible positions in high powered jobs. How do you cope with the stress, forgetting the details, tight deadlines, etc? What advice would you give on being success in your work?

@lisalucier

Just wanted to let you all know I've moved this discussion to the Brain & Nervous System group.

@stephenluptak – wondering if you could share a bit more about challenges you've faced with having normal pressure hydrocephalus in your career? Have you found any tips or tricks that have helped you along the way?

@lady1lake – you mentioned that in addition to having small cell lung cancer 3a, you have hydrocephalus and are looking for options to control it. Are you working currently? If so, would you share anything anything that has helped you cope at work while dealing with the hydrocephalus?

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Lisa, I have been spinning my wheels in the snow for far too long! My biggest challenge has been job hunting.

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@stephenluptak

Lisa, I have been spinning my wheels in the snow for far too long! My biggest challenge has been job hunting.

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@stephenluptak – will you share more about how the job hunting has been going? I know that job hunting can be stressful at any time, but wondering if you are finding the normal pressure hydrocephalus is putting unique challenges or strains on that process?

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@lisalucier

@stephenluptak – will you share more about how the job hunting has been going? I know that job hunting can be stressful at any time, but wondering if you are finding the normal pressure hydrocephalus is putting unique challenges or strains on that process?

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I'll share that I have attempted to find appropriate employment in the spring, but I have suffered a psychosis they call it every fall when the weather gets hot
My pcp won't sign a form on a physical so I cannot attain certain management positions. I dont want to run a cash register. I have executive experience. So, I have SSDI, and my main role is to maintain my health and advocate for wellness and sanity for everyone.

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@Erinmfs

I'll share that I have attempted to find appropriate employment in the spring, but I have suffered a psychosis they call it every fall when the weather gets hot
My pcp won't sign a form on a physical so I cannot attain certain management positions. I dont want to run a cash register. I have executive experience. So, I have SSDI, and my main role is to maintain my health and advocate for wellness and sanity for everyone.

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I'm very sorry to hear about your primary care provider not being willing to sign a form on a physical and thus not being able to attain management positions, though that is your career background, @user_chdb5e8ac. How are you feeling about that?

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@lady1lake

I do not have a shunt. Hydrocephalus was the diagnosis given after a brain MRI was performed at Mayo. I go back there next week for another consultation. Gardening is my favorite pass time when my energy allows. My new passion is creating miniature gardens with succulents.

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Hi, @lady1lake – you mentioned going back to Mayo Clinic for another consultation following the MRI and diagnosis of hydrocephalus previously. How did things go?

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@lisalucier

Hi, @lady1lake – you mentioned going back to Mayo Clinic for another consultation following the MRI and diagnosis of hydrocephalus previously. How did things go?

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I met with my oncologist last week to discuss not having whole brain radiation (my decision) since there are no Mets there. He now wants me to have a brain MRI every 3 months for a year to keep check. He set me up with an appt. tomorrow with a neurologist for a consultation concerning the hydrocephalus. Will let you know what’s next on this journey.

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What are the diagnosis and treatment codes for NPH?

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Hi @stephenluptak,

I moved your message about diagnosis and treatment codes for NPH to this discussion so that you could reconnect with the members. Here’s an interesting study about, "Diagnosis and Treatment of Idiopathic Normal Pressure Hydrocephalus” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5390935/
And, some additional information about Mayo Clinic's Memory Disorders Laboratory
– Amyloid Beta Imaging in Normal Pressure Hydrocephalus https://www.mayo.edu/research/labs/memory-disorders/projects/amyloid-beta-imaging-normal-pressure-hydrocephalus?_ga=2.125869646.299116918.1550754204-1855347324.1544593603

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