Nothing to mess with

I can't wait. I have written two times and I was going to reread it and it went away. This happened two times..ugggh
Hope to hear from you soon.
Until next time.
Marie

@sillyblone

My private messaging still won't allow me to send private messages so I decided to just post a general message to let those who have contacted me and knew that my husband had an appointment yesterday with the Pancreatic Cancer Prevention clinic, what he was told. I didn't go for the reasons I posted earlier. BUT, he said it went very well. He met with one of their surgical oncologists who told him that she met with the rest of their "Board" and they all agreed that my husband's scans did not show any signs of cancer this year; so . . . YAY!!!!

He also said that they agreed he should continue to go in for yearly scans and that when/if the IPMN on his pancreas reaches 2 cm., they will do a biopsy here at the local level. It's measured right now at 1.5 x 1.7 cm., so along with the yearly MRCP scans they are planning on running here, the doctor ordered a Ca 19-9 pancreatic cancer marker blood test today for him and repeat that test every 6 months. She also told him that with his cancer history and with his family's history of cancer, they want him to complete genetic testing. So, once he turns in the paperwork, they will be running that for us. We have two daughters and one grandchild; so, largely for his sake but also for the sake of our kids . . . they want that done.

All in all . . . a good visit. We/they will be doing everything that can be done at this point to monitor things the best that they/we can.

Whewwww! Cross that off our wish list. Looks like, too, that if/when that stupid cyst reaches 3 cm., they will remove it.

Next on our agenda/wish list will be that when we do the televisit with his nephrologist at the Mayo Clinic for his kidney disease next week, we're hoping she'll refer us to a local lab for the future results she needs to keep tabs on the MGN kidney disease, either by yearly in-person visits or regular televisits to spare us the 3-hour trip, each way, to Rochester. We don't mind taking that road trip if we need to but since my husband seems to be holding his own with that part of our challenges . . . . there's no reason we can justify to drive that far for only lab tests if we can find a lab here that will cooperate with her ordering them. So far, here, we've run into too many issues in trying to get that done.

I guess that's it for now.

Just wanted to send the latest info out there.

Thanks for caring!
Dawn

@suppiskey2surv Always! I will pray for you and your spouse that the lab work can be done closer to your home. Mayo has always wanted in person labs . But just maybe you can be the exception. It is not just Mayo , lots of hospitals want the labs from there perferred outpt. places. Believe me when I say we have of lot of hospitals in our area. All have their prefences. Take care and look forward to your update. 🫂💕🙏

@sillyblone

My private messaging still won't allow me to send private messages so I decided to just post a general message to let those who have contacted me and knew that my husband had an appointment yesterday with the Pancreatic Cancer Prevention clinic, what he was told. I didn't go for the reasons I posted earlier. BUT, he said it went very well. He met with one of their surgical oncologists who told him that she met with the rest of their "Board" and they all agreed that my husband's scans did not show any signs of cancer this year; so . . . YAY!!!!

He also said that they agreed he should continue to go in for yearly scans and that when/if the IPMN on his pancreas reaches 2 cm., they will do a biopsy here at the local level. It's measured right now at 1.5 x 1.7 cm., so along with the yearly MRCP scans they are planning on running here, the doctor ordered a Ca 19-9 pancreatic cancer marker blood test today for him and repeat that test every 6 months. She also told him that with his cancer history and with his family's history of cancer, they want him to complete genetic testing. So, once he turns in the paperwork, they will be running that for us. We have two daughters and one grandchild; so, largely for his sake but also for the sake of our kids . . . they want that done.

All in all . . . a good visit. We/they will be doing everything that can be done at this point to monitor things the best that they/we can.

Whewwww! Cross that off our wish list. Looks like, too, that if/when that stupid cyst reaches 3 cm., they will remove it.

Next on our agenda/wish list will be that when we do the televisit with his nephrologist at the Mayo Clinic for his kidney disease next week, we're hoping she'll refer us to a local lab for the future results she needs to keep tabs on the MGN kidney disease, either by yearly in-person visits or regular televisits to spare us the 3-hour trip, each way, to Rochester. We don't mind taking that road trip if we need to but since my husband seems to be holding his own with that part of our challenges . . . . there's no reason we can justify to drive that far for only lab tests if we can find a lab here that will cooperate with her ordering them. So far, here, we've run into too many issues in trying to get that done.

I guess that's it for now.

Just wanted to send the latest info out there.

Thanks for caring!
Dawn

@suppiskey2surv I'm so happy you scored a win! After everything you've been through I'm sure there were so many moments that made you doubt if you'd ever score one again. So glad to hear that! My wife and I are very fortunate that we live 30 min from the Jacksonville, FL Mayo location so I don't have any experience with the third party lab situation but. I hope you are able to figure out a solution. Congratulations on the good news!