Notalgia Paresthetica help

Posted by lgerkin @lgerkin, Mar 19 7:55pm

Hi – has anyone been diagnosed with Notalgia Paresthetica? I've had the itch that comes with this condition for years, but it has worsened over the last year and is now very painful. The center of the pain is under my left shoulder blade. I'm also experiencing numbness in my left arm. I've had x-rays and MRIs but no doctor has been able to address it – or even acknowledge that it's an issue. I've been in physical therapy for months and tried acupuncture but neither have helped, although my posture has improved greatly. Any feedback is appreciated!

Hello @lgerkin. I'd like to invite some members who posted about paresthetica on Connect in the past, @paind, @jigglejaws94. If I read your post correctly, the cause of your notalgia paresthetica is currently unknown?

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Thanks so much! I believe the cause is a compressed nerve, since I'm also experiencing some numbness in my left arm. There could also be some mayofascial pain going on as I've carried heavy totes on my left shoulder for many years and the repetitive strain is bound to be a factor. The itching that comes with notalgia paresthetica has been off and on for over 20 years, and it's still there, but the pain is front and center for the last year. An Xray showed mild DJD and the MRI showed DJD and some fairly common benign tumors called hemangiomas, but my doctor didn't think they were the cause of the pain. I'm also having pain in my sit bone/ischial tuberosity and have been working with a pelvic floor specialist but no relief yet. I'm fine with standing in terms of back and pelvic pain but sitting has become very painful. Probably TMI here, but just wanted to put it out there in case it's helpful:) Thanks again!

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