Not exactly sure what I have Some say Neuropathy

I find neuropathy is uncomfortable and can even be discouraging...Once I came to accept and "sort of" embrace the condition (I prefer condition to disease, my issue). The meds that were prescribed did negative things that were worse than the Neuropathy. I know others that can and do take them as it helps. I was angry for a while because nothing helped "me". Anger or negative feelings can cause the neuropathy to be worse for for this Idiopath...grin.

Yup, been there and done that - Psst, my English teacher taught me better but it's all because as a technical writer with "iv'e been moved", I was forced to write to the 8th grade language level. I had many angry sessions with translation centers in the early days but had to resign to doing the best job I could with what tools I had. I let my PN go and did nothing about it for close to 20 years. But it started walking up my legs which made me rethink my options. That's when I went to the neurologist, had the EMG and exam and was given the idiopathic small fiber peripheral neuropathy diagnosis. Even though I only have the numbness I didn't like the neurologist telling me their was no real treatment that was going to help and to just let him know when it got worse....HELLO, I don't want to wait. I started doing my own research and found Mayo Connect and more.

So, my new motto is never give up (could change it to never give up the ship since I was in the Navy).

Happy Tuesday!

John

Okay, I have been to PT this morning-for my knee. Anyone w/ neuropathy can well imagine what this has done to all other parts of the anatomy as if neuropathy is not enough (:- p). I am 3 wks. into this. An effort to get prior insurance authorization for an injection and I was approved-that takes place on 8/10. Insurance had already approved 6 wks. of PT. Yup, I will finish out that 6 wks. too. I can be as stubborn as a hog on ice at times.

@johnbishop off the topic of "N". The old cowboy I worked w/ in the early 70's was in WWII. He never talked about it and never said which branch. He and I were a team and could rope and brand calves in the Spring that would have put rodeo hero's to shame. When the weather warmed and we could work the higher altitudes we worked on Dude Ranch's. His wife was 100% Cherokee and he was 1/2. The things I learned by watching.

We had taken a pack trip into the Bridger Wilderness and a retired NY cop was allowed to tag along for free. It was when this cop shoved me aside while the old cowboy (Oscar) and I were packing a horse and said, "This is man's work!" No doubt which branch he had been in as I not ever heard a profane word from him. The retired cop was silent the rest of the trip. Also explained his strong dislike for high water.

We all have pasts and when you stated you were in the Navy this past popped into my mind. TMI perhaps, but a happy memory.

English teacher?? Correct grammer only makes enemies. :-p

☺

I have been suffering from Ulnar Neurpathy and Brain Shrinkage. Not able to work with tiredness throughout the day. Doctors prescribed only sedative tablets for sleep during night times which effects in day time also. CSVD problem also. None of the doctors in India feel the difficulty faced by these problems. Kindly advice. Venkatesan.

Hello @venki, I would like to add my welcome to Mayo Connect and thank you for sharing. I have small fiber peripheral neuropathy and polymyalgia rheumatica (PMR). I too feel tiredness throughout the day. I find that I have to focus on getting to bed earlier than I want so that I get at least 7 hours of sleep.

Are you doing any treatments for your Ulnar Neuropathy? John Hopkins Medicine has some non-surgical treatment suggestions on their website here:
http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/peripheral_nerve_surgery/conditions/ulnar_nerve_entrapment.html

Keep searching and asking questions. You are your best advocate...

John

Hi, @venki . I understand the difficulty in getting doctors to understand, and then to send you to a doctor who could be able to give you real help.

Almost every time I visit a doctor, I Google things they said. I am like you. I want to know exactly what's going on.

Have you asked your doctor to recommend another doctor who specializes in neuropathy, who would be a neurologist?

Jim

Sir I am Venki. I would like to share that as soon as doctors see my MRI scan they tell ' Nothing to worry'. As I am having CSVD they tell that its common as most of the elderly people will be having CSVD. But the Brain shrinkage, CSVD, Ulnar Neuropathy has made my life problamatic. I am not fresh during morning hours. Doctors have not specifically given any medicine for Ulnar neuropathuy. Only Ecopsprin, Lipitab & Peg SR I am presentely taking. They don't give importance to the brain shrinkage and other neurological problems in India. As I visited some neurologists India has to develop in these fields. Expecting specific medicines for these. Thanks.

Hello @venki, I am not sure there are specific medicines for Ulnar neuropathy. I have no medical training or background and like you was looking for specific medicine to treat my neuropathy. What I found out through all my searching was that there is no one answer for everyone. What works for one person may or may not work for someone else. Most drugs for neuropathy fix nothing but instead they block pain signals to the brain so that you don't feel it. The downside of the drugs is that eventually you have to take more and more of it and they all have side effects that can be worse than the pain. Since I only have numbness with my neuropathy, I was really depressed when my neurologist diagnosed me with idiopathic small fiber neuropathy and then told me there are no drugs or topical creams, oils or other products that will get rid of the numbness. This was why I joined Connect and started my own searching into something that works for me.

I had never heard of brain shrinkage before I read your post so I did some reading and found an interesting article - Brain shrinkage in multiple sclerosis associated with leaked protein in blood - http://www3.imperial.ac.uk/newsandeventspggrp/imperialcollege/newssummary/news_13-12-2016-15-2-44

I hope you keep searching for something that will work for you.

John

I like you suffer from neuropthy but do not have diabetis and have good circulation I am 76 years young . I am very active but I have been deal with this for years. In the beginning I just had severe restless legs which I still have, take Myrapex for this, about 16 years ago started having numbness in my feet burning pins and needles. Every thing I read addresses diabetic neuropthy nothing about people who have it severely but no diabetes and good circulations . Very frustrating I have been every where tried about everything nothing helps. They like to give you strong pain pills do not like them...is there no help for me???