Increasingly Difficult to Accept Peripheral Neuropathy

I hate to say this but what's the point of "finding a doctor who specializes in neuropathy" when there is nothing that can be done for it. I've tried three different medications. I have 4 doctors in the family and the most unfortunate answer of the moment is there is no way to get rid of it. We have to live with it until they find the cure.

I’m not sure what NHS is. Are you in the US? I think probably most of us have had our personality. I use to be funny and it made me feel good when my friends laughed. They said I missed my calling and should have been a comedian. I don’t have much of a sense of humor. I find it difficult to laugh when I’m so miserable. What makes it worse is we look normal to people and I have heard “ you look normal to me”. Or my wife wouldn’t understand one day we are in bed feeling like we are dying and the next day I would cut the lawn. You don’t know from hour to hour how you are going to feel. As far as anger and depression you’re going through the different stages of grief. No doubt this disease controls our entire lives. One of my friends who was dying of bone cancer told me she felt so bad for me and said she is glad she has cancer and not Small Fiber Neuropathy and Autonomic Neuropathy. To put this in context she did not feel bad or have pain until her last few months. We start out with terrible pain. And the pain can be so different from day to day and rarely do we get breaks from the relentless pain and exhaustion from going through the pain. I’m
15 years into this. Knowing I have to deal with this today is overwhelming just thinking about it. I still try to live as normal of life as I can. Then 2 years ago my wife divorces me because “she has better things to do in her retirement other then sit around watching me die.” She is tired of the doctors visits, emergency room visits not being to travel because of me. 25 years we were married with 4 kids and she leaves. Talk about being depressed…,.,,
Hang in there, you will learn to cope. Yes your life and personality has changed, but try to find something good each day. Even if it’s just laughing at something you read or watched on Instagram. I wish you the best.

I take Cymbalta and haven’t noticed any side effects. Sorry to hear that you can’t take it. It is strange how different people react so differently to certain medicines.

Did you mean, you can or can't watch TV? I can but it's not fun when the horrible attacks start. I too want to lay down and sleep it away at night. My wife could have the TV on but when I'm ready and I need to lay down, I do it. My nighttime sleep seems to calm the nerve inflammation but a rest or nap in the afternoon makes the numbness and pain worse. Can't figure out why.

Can’t watch TV when I’m very sick. I can’t take noise or light. It over loads my nerves and make the issues worse.
I have pain all the time. Nights and mornings are always the worse. The pain is so bad at night I try to chemically knock myself out just to get a couple hours of uninterrupted sleep.

I've mentioned this before. I bought some VoxxLife patches, I like The Liberty. It has cut down by a third the pain and helps my balance.

There is no medication to cure neuropathy, but there are numerous studies using supplements. I wanted a cure, not just pain relief. I read one study from the Cleveland Clinic that showed good results and have been following their recommendation with good results. They recommend taking 400 mg of CoQ10 and 20 mg of PQQ daily. The neuropathy in my hands is completely gone and my feet are much improved. The majority of the pain in my feet is gone, but I still have numbness in some places. I started this a year after chemo. The hands showed improvement quickly, the feet were slower. But the worst of the pain was gone in 3-4 months. Not an overnight cure, but my pain is gone.

This is what has helped me a lot with the peripheral neuropathy I got from chemotherapy.
https://voxxlife.com/wp-content/uploads/2019/12/3.-Independent-Study-Impact-of-Voxx-HPT-on-Pain-Management.pdf

Hi raybaby,

Many thanks for posting that, I'll have a look as I'm about to have my third bout of chemo starting next week.(just finished chemo last march for advanced ovarian cancer). I'm also diabetic Type 1, (since childhood) and suffered from neuropathy for some time. However some years ago, I discovered R Lipoic acid which I found really helped stop the nerve pain. I believe you should take thymine (b vitamin) with it as it can deplete that in your body, but you'd need to do your own research regarding this. I found it really helped me and quenched the pain.

I'm taking alpha lipoic acid. I'll look up R Lipoic Acid. I also take various B vitamins. The nice thing about the Voxxlife patches is that they aren't a supplement. They actually affect the path from the body to the brain.
I mentioned previously that a friend I told about the patches started taking them for the awful pain in his feet from diabetes that he had spent thousands on trying to fix. He put patches under his toes and it STOPPED the pain. I think they also give me energy. I have a hard time keeping t hem on. I often put medical take over them to keep them on.