Non-Mayo Providers Suggesting Patients Are Faking Illness
Hi! I am posting this topic to see what other Mayo patients think of this issue. Recently on Twitter there was a viral video that showed a nurse dancing along to the "beat" of a patient's heavy breathing, and the caption said "We know you're faking." Many, many people responded with stories about how they as patients were not believed and thus were not diagnosed correctly and went on to be very ill. Some even had people close to them that did die. It started a lot of conversation about not being believed. Along with that was discussion of fatphobia, drug-seeking behavior, homelessness, BIPOC issues, women's issues, and more.
I grew up in Rochester but lived in other cities for about 15 years before I came back here. I do primary care at a Mayo primary care clinic but I was elsewhere for the 16 years. Thinking of the issues I brought up above, I realized I have never experienced any of that at Mayo.
I went to the ER at St. Marys several months ago because I thought I was having a heart attack. It was a panic attack, so my blood work and other tests were all normal. I could see them easily dismissing me and thinking I was faking, but everyone was compassionate and treated me with respect, even in the waiting room where I started crying because I was so worried. They said, "you're in the right place!" I was in the ER 2 other times this year (it's been eventful) and I've made heavy use of Mayo's resources due to my illnesses and all the people I've worked with have been excellent. I experienced zero of the issues I've been reading about on Twitter, but in the other cities I did receive questionable treatment. Even calling on the phone to Mayo to discuss an insurance question was painless.
I'm curious to know what others' experience is. Have you struggled at Mayo to receive proper treatment? Have you noticed better care at Mayo? I just keep going back to that it's the #1 hospital in America for good reason.
The biggest difference for me has been my PCP. I have been very noncompliant for many years and the turning point for me came earlier this year. I had 4 goals I was supposed to meet, and I met zero of them. Instead of getting mad at me, she said, "That's ok, we're here to help figure out why that happened." We did and I've now been compliant for about 3 months. She gave me a hug last time I saw her because of the good results!