1. < Blood Cancers & Disorders

Non Hodgkin's Lymphoma- Watch & Wait Approach

Posted by Jackie, Alumna Mentor @travelgirl, Jun 15, 2018

I would like to meet others who were diagnosed with a lymphoma and are on watch and wait treatment.

I have been on a watch and wait lymphoma watch now for 2 1/2 years. I currently get blood work done every 6 months and a CT Scan once a year.
Has or is anyone else having the cancer monitored like this? Are there people who lived their whole life without ever getting treated for lymphoma?
Would love if we could share our progress on here.
Jackie

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vonbaron36 | @vonbaron36 | Oct 23, 2018
In reply to @travelgirl "@susanlim Welcome to connect @vonbaron36 Do either of you take Vitamin C ? When I was..." + (show)
@travelgirl

@susanlim Welcome to connect @vonbaron36 Do either of you take Vitamin C ? When I was first diagnosed and my lymph nodes were enlarges I started taking that. Vitamin C is good immune booster. One food I ate regularly was Sweet potatoes that has some good vitamins to help boost our recovery. Lots of lean proteins. My lymph nodes shrunk by themselves and with NHL they do go up and down in size. I was told by my Dr that Radiation and chemo does not cure or extend a persons life with NHL. They found a watch and wait to more effective since the lymph nodes are known to go up and down in size. Exercise helps us. Which I have trouble staying consistent with. Read about Vitamin C and ask your Dr about trying to take a larger dose will benefit you?

I wish you the best Jackie

Jump to this post

No I didn't take vitamin C. In fact I don't take any vitamins.

REPLY
susanlim | @susanlim | Oct 23, 2018
In reply to @travelgirl "@susanlim Welcome to connect @vonbaron36 Do either of you take Vitamin C ? When I was..." + (show)
@travelgirl

@susanlim Welcome to connect @vonbaron36 Do either of you take Vitamin C ? When I was first diagnosed and my lymph nodes were enlarges I started taking that. Vitamin C is good immune booster. One food I ate regularly was Sweet potatoes that has some good vitamins to help boost our recovery. Lots of lean proteins. My lymph nodes shrunk by themselves and with NHL they do go up and down in size. I was told by my Dr that Radiation and chemo does not cure or extend a persons life with NHL. They found a watch and wait to more effective since the lymph nodes are known to go up and down in size. Exercise helps us. Which I have trouble staying consistent with. Read about Vitamin C and ask your Dr about trying to take a larger dose will benefit you?

I wish you the best Jackie

Jump to this post

Thanks!

REPLY
Jackie, Alumna Mentor | @travelgirl | Oct 23, 2018

@susanlim Welcome to connect @vonbaron36 Do either of you take Vitamin C ? When I was first diagnosed and my lymph nodes were enlarges I started taking that. Vitamin C is good immune booster. One food I ate regularly was Sweet potatoes that has some good vitamins to help boost our recovery. Lots of lean proteins. My lymph nodes shrunk by themselves and with NHL they do go up and down in size. I was told by my Dr that Radiation and chemo does not cure or extend a persons life with NHL. They found a watch and wait to more effective since the lymph nodes are known to go up and down in size. Exercise helps us. Which I have trouble staying consistent with. Read about Vitamin C and ask your Dr about trying to take a larger dose will benefit you?

I wish you the best Jackie

REPLY
2 replies
susanlim | @susanlim | Oct 23, 2018
In reply to @susanlim "Thank you! About the same. I hope it helps, but I figure it cannot hurt. Wishing..." + (show)
@susanlim

Thank you! About the same. I hope it helps, but I figure it cannot hurt. Wishing you continued good health.

Jump to this post

They would not consider radiation for me because possible region too big (neck and both armpits). So watch and wait.

REPLY
susanlim | @susanlim | Oct 23, 2018
In reply to @vonbaron36 "Also my curcumin has BioPerine for absorbtion. And I use pepper on my eggs also." + (show)
@vonbaron36

Also my curcumin has BioPerine for absorbtion. And I use pepper on my eggs also.

Jump to this post

Thank you! About the same. I hope it helps, but I figure it cannot hurt. Wishing you continued good health.

REPLY
1 reply
vonbaron36 | @vonbaron36 | Oct 23, 2018
In reply to @vonbaron36 "I take 1000 mg. curcumin, once a day, Also I sprinkle turmeric on my boiled eggs..." + (show)
@vonbaron36

I take 1000 mg. curcumin, once a day, Also I sprinkle turmeric on my boiled eggs every morning for breakfast. Its been four years now and no cancer. As a bonus I also have no arthritis problems and I am 82 years old. Still have my fingers crossed. Good luck.

Jump to this post

Also my curcumin has BioPerine for absorbtion. And I use pepper on my eggs also.

REPLY
1 reply
vonbaron36 | @vonbaron36 | Oct 23, 2018

I take 1000 mg. curcumin, once a day, Also I sprinkle turmeric on my boiled eggs every morning for breakfast. Its been four years now and no cancer. As a bonus I also have no arthritis problems and I am 82 years old. Still have my fingers crossed. Good luck.

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2 replies
susanlim | @susanlim | Oct 23, 2018
In reply to @vonbaron36 "Three and 1/2 years ago I had a large tumor on my neck and a small..." + (show)
@vonbaron36

Three and 1/2 years ago I had a large tumor on my neck and a small one by my groin, both cancerous.I had radiation on both. A pet scan showed no cancer. There was nothing to do but watch and wait to see if and where it would occur again. I knew my follicular lymphoma was incurable at the time. I did not want to just wait until it came back, and with no other options I decided to research other options on my own. I decided to try curcumin. Over three years later and two PET scans and a CT scan last month found no cancer. I know that it can go into remission on its own, but it makes me feel better doing something that might be helpful. Next PET scan next March.

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Hi, May I ask how much curcumin you took? I am trying 1200 mg per day with 10 mg black pepper Bioperine. Thanks.

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njnana | @njnana | Jul 13, 2018

This is GREAT information! Thank you for sharing!

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Jackie, Alumna Mentor | @travelgirl | Jul 11, 2018

I found this Excellent Story Written about Lymphoma and the Wait and Watch Approach I want to share it here for everyone. It was posted by Lymphoma Action a UK Charity Group and advocate for Lymphoma Patients..
https://lymphoma-action.org.uk/about-lymphoma-treatment-lymphoma/active-monitoring-watch-and-wait
Let me know how you like the way they explain why DR's use a Wait and Watch approach?

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