Non Hodgkin's Lymphoma- Watch & Wait Approach

Hope you have many more years of W & W.
I was on W & W for a year and started treatment in July because nodes were getting larger. Treatment of Rituxin & bendamustine is not to bad. Nodes shrunk after first treatment.

I've been on watch and wait for four and one half years, with Non Hodgekins lymphoma, no treatments in five years.

@Ginene05 - Just curious, did you have 3 cycles of RCHOP or 4? The NCCN "guidlines' for stage 1 or 2 NHL is 3 cycles + radiation. But, since your tumor was removed, I assume your didn't have radiation. Im asking because Im in the same boat, having a NHL tumor removed from my large intestine with no metastasis, so nothing to radiate. Ive finished 3 cycles of RCHOP and consider my treatment done. My oncologist says one more cycle is necessary. Ugh!

Thank you Njnana, for describing your rash experience. Mine is suspicious as it just doesn't change, whatever I rub on it. I also thought ringworm when the cortisone cream had no effect, so I used an antifungal, no change. It is aboutvthevdize if a quarter. It gets redder after a shower or bath. I will go get it checked and let you all know.
If it wasn't for my swollen neck glands, that started last July, 2018, I would never have suspected anything out of the ordinary. I have never heard of Morphea, I will research it now.
Jackie, I read the news about your tooth. I hope it's improving, keep us posted.
Bridget

Please keep us posted on your tooth Jackie..

You need a second opinion from another dentist. Cracks in teeth usually do not show up on X-Rays. Telling you to relax while you sleep to ease up on the pain is ridiculous - it is unconscious - you cannot control the stress in your jaw like that. I used a bite guard (dentist-made) for years, but only really got relief from a new dentist who adjusted my bite by filing down a tooth which was throwing my bite off. She also sent me to jaw therapy with a PT (yes, there really is such a thing), and putting me on a soft diet for 6 weeks to rest my jaw.

I have been watching a small node in my groin for six months. In two weeks I will have a PET scan to see if it has grown or metastasized. Will let you know the results.

Why are people with no symptoms getting ct scans once a year? This exposes the body to radiation. What is the purpose?

The dentist (or a more skilled one) should be able to make you a special anti-grinding retainer to wear at night. They make them now if lightweight clear plastic. But it must be properly done, or you will grind more. It will discourage grinding and protect your teeth.

So I went to the dentist today. He claims nothing wrong with my tooth he can see. the xray looks normal. Tooth looks fine. He thinks it is traumatized from clenching down so hard from grinding my teeth. I may have a possible crack that they would need to do a root canal. But to hold off. Cause the pain is not constant.

He wanted to know if I was stressed or nervous about anything in life? Me, No not at all being diagnosed with 2 primary cancers two weeks apart. Why would I be stressed and nervous? I go well I suppose this is a side effect of having Lymphoma and cecum cancer? You grind the hell out of your teeth...

Seriously anyone else have issues with grinding teeth ,so bad while they sleep they end up, with a sore jaw, and teeth clanging together so bad it hurts to eat?

They told me to take 2 advil when my mouth starts to hurt. Try not to bite down on the left side of my mouth.

It hurts so bad I barely ate last week... UGH These Dentists are torturing me..

Any advice besides putting whiskey on tooth? That what my friends said to do.. LOL..
Thanks
Jackie