Non Hodgkin's Lymphoma- Watch & Wait Approach

@vonbaron36 I been on a Watch and Wait since January of 2016. I dont feel or see any swollen lymph nodes. Mine lymph nodes they r waiting r near my Aorta. That is a good sign you could be on watch and wait your whole life. 🙂

@gingerw Hi Ginger, nice to meet you. I been swamped with work and my move. Don't believe you and I have chatted yet.
What made the new doctor diagnose you with lymphoma? I am not familiar with MGUS. Is that a Lymphoma? Now did the Doc say what exact kind of non-hogkins lymphoma you have? There are about 65 different types associated with this disease. You also mention kidney disease. Is that a complication from the MGUS? How is your blood work?

@kittykiernan so sorry to hear. Who diagnosed you with Epstein barre virus? Can you go back to that Dr? Will he help you?

@susanlim I agree but I think it gives them an idea if the disease is stable or becoming aggressive ?

Hi everyone, I have seen now 3 dentists since my last post. I got to tell you all I really despise dentists. The prosthodonist said the crown was not made correctly. I saw her 3 times.. she shaved to tooth down 3 times. The endodontist monitored the tooth and prescribed a rinse sooth the gum line and tooth. He thought the tooth was ok but the crown didn't fit right. The prosthodonist called the original dentist to tell him the tooth was not properly fitted and that he needed to redo the crown. Then that would result in a root canal. So the original dentist I went back to today. He decided to put a seal around the tooth and shave it down even more. Let see now if this works before he yanks it off and remakes the crown? This is complete torture.

Can you tell me what dosage of curcumin you used? I hope your cancer stays away!

Chronic Epstein barre causes it , I have it and I am brca 2 positive had full mastectomy and hysterectomy

Nope no one does nothing for me

@kittiekiernan Have you been examined and tested for this? If your primary dr will not refer you to a specialist, can you appeal to your insurance for help?
Ginger

@travelgirl This is my first post on this group. Last week i went to my new hematologist-oncologist. In Oct 2017 my oncologist told me I had MGUS, after a bone marrow biopsy, and had been monitoring it every three months. Last December she decided to wait for six months. Wrong thing to do. All my blood values went wonky. I also am Stage 3b kidney disease, and those values were off their normal, too. In the midst of all this, I moved to another state. My new h-o told me "I see you have low-grade Non-hodgkins Lymphoma for 2 years, so you've had a while to get used to this, and now these possible complications". I was so stunned I didn't tell him the other h-o hadn't told me that, ever. All I was ever told was MGUS. I have a bone marrow biopsy in 2 weeks, with a consult with new nephrologist next week; hoping to not repeat the kidney biopsy. Because of the complicated case of NHL + kidney issues, they have to look at everything. No drama from me, I want the facts.
Ginger

I know I have this from my chronic Epstein barre virus plus had breast cancer Barca 2 positive, have every symptom, I feel like I’m dying and NO one will test me for this