Lymphoma in the duodenum & explosive BMs, enlarged abdomen

Posted by caringwife @caringwife, 3 days ago

My husband was diagnosed with Lymphoma in the duodenum in 2018. He had surgery to remove the area. Well, all these yrs later and trips to many GI Drs who have ordered all the testing's, including the SIBO test. everything comes back as "normal". Why then does he continue to have liquid almost explosive BMS and enlarged abdomen?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Hi @caringwife, I added your question to the Blood Cancers support group as well as the Digestive Health support group. I believe members like @heathermcfarland @klinden @elliwinders have experience GI issues with the diagnosis of lymphoma or other blood cancer. @hopeful33250 has a different cancer in the duodenum and has had surgery and may have thoughts to add as well.

Caringwife, are the GI issues new or has your husband had them since surgery in 2018?

REPLY

Could it be "short-gut syndrome?
Definitely would look into

REPLY

Hello @caringwife,
I’m sorry to hear that your husband is having such difficulty after duodenal surgery. As I have had three surgeries of the duodenal bulb, I understand how difficult it is for us to adjust to a new “digestive landscape.” Once the digestive tract has been altered due to surgery, we usually need to change our eating habits.

If your husband has not been referred to a registered dietitian, I would highly recommend this type of referral. A dietitian may be able to recommend a different eating plan (i.e., timing of meals, quantity of foods at each meal, ways of cooking meals, some foods to avoid, etc.). Often, keeping a diary of foods eaten and noting the effect on the explosive diarrhea might also be helpful.

Does this sound like something that your husband might be willing to consider?

I'm inviting some members of Connect to add their thoughts: @caryn13 and @jimdiehl. While their surgeries are different than your husband’s surgical experience, the way that they have adjusted to the changes resulting from surgery might be quite helpful to him.

I look forward to hearing from you again. Will you post updates?

REPLY
Please sign in or register to post a reply.