No testosterone on Lupron, can I build muscle strength by working out?
If I am on Lupron, can I build muscle strength by working out? I know I cannot build bulk without testosterone and that is okay. I want to regain my strength.
I lost strength and bulk and gained weight while on Lupron.
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yes plant based whole food diet with protein from Tofu, Lentils, Beans, nuts and seeds is good for overall health. Eggs, Dairy and red meat not so good from what I read.
I thought you said you are 86 in an earlier post? you are only 82, right?
Last time that I looked I was and still am 78 and I have been treated by UCLA , Donin and Reiter since 2021. If I posted differently in the past it might have been joint pain while posting. I have that and I have been advised that it is probably a side effect from Lupron.
My testosterone has been almost nonexistent since I started Lupron/Abiraterone/
Prednisone four years ago. I did not gain weight or lose muscle due to doing intense yoga three times a week, resistance training (weights) two times a week and walking 3-5 miles a day. I have been off Lupron for 9 months now, but my testosterone is only slowly returning so I am still plagued with the side effects, although they are improving.
I have been on Zoladex for over 5 years now except for about 18 months in the middle where my PSA was hovering around 1 I stopped having the injections because I believed it was causing a rash all over my body and extremely bad on my legs to the point I was asking my doctor if I could get them cut off. My doctor consistently said it was nothing to do with the Zoladex which I disputed. My itchy skin had very much reduced after the 18 months off the Zoladex but about 7/8 months ago my PSA started to climb again and my doctor suggested another Zoladex injection and I agreed. First 3 months fine, but just after the second injection the itchy skin returned with a vengance. I confronted my doctor about it and this time his tune was different saying that it was quite possible because it can have nasty side effects. I told him I would never have another Zoladex ever again, I would prefer to have the cancer. Anyway after boring you with all this stuff , I am wondering if it might be worth me trying the Lupron?
My favorite pick me up is Prednisone, I call it my go faster tablet. Just wish I could have it more often. Only downside is if I have a half 25 tablet early in the morning I have trouble sleeping that night because I am wide awake
Do you absolutely need it? If not, I suggest staying off everything. People who take ADT intermittently live longer than people who take it continuously, although they are somewhat more likely to die of the cancer, they are much less likely to die of other causes. Also, if you keep taking ADT drugs, you will probably become resistant to the drugs and they won’t work any more. ADT has awful side effects. If your PSA is very low and is stable, maybe wait for it to start increasing on a regular basis before going back on ADT.
Well Jim, the only reason I went back on the Zoladex was because my PSA was rising and my latest test result it was back down to .16 but I know that once I stop it will rise again after a few months. I'm starting to think at my age why bother it is not worth the side effects it brings on, I can't keep putting up with the hives over my body and having to get out of bed a couple of times a night to put Epaderm cream on them so I can go back to bed and maybe get a bit more sleep. I was wondering what the side effects of Lupron might be
Are you saying the Prednisolone is an ADT drug, I know when I first got it I took 30 x 25mg tablets over 30 days and the doctor freaked and told me to stop. Problem was I had never felt so good I felt like I was 21 again
There is a new breed of ADT drugs. Orgovyx being one, often used in combination with Nubeqa or Xtandi. My doc will probably start me on Orgovyx + Nubeqa saying combos have now become standard care.
I count myself lucky for two reasons, one is my cancer was mostly G6 with one core upgraded to G7 upon a second opinion (slide sent to Johns Hopkins)
Second, I choose to remain on testosterone replacement throughout and almost 4 years post SBRT, my PSA is 0.06
My family doc and urologist's all decided to stop my prescriptions for T even though my testosterone level fell to 25 after stopping TRT
I felt like Sh--! I can deal with weight gain muscle loss and loss of power but the extreme anxiety and profound sadness was too much for me. I was crying at the drop of a hat or any silly sad commercials and would fly off the handle with anger at times.
I found a clinic some miles away and withheld my Pca diagnosis
Yes I told my oncologist and family doctor, urologist's etc.. but not the clinic doctor.
So bottom line is maybe I dodged a bullet and I am not suggesting this for others but I am doing just fine and am glad I took the chance.
Again my Pca was lower risk then many others and please listen to your team as well as use common sense-only you can assess the risk benefit
Glen
In a couple months, it will be one year since I stopped Orgovyx and my testosterone is dropping instead of going back up. My urologist is very cavalier about it, saying it happens sometimes and that I may have testicular failure but that TRT is 100% off the table. 3 months after stopping I was in the mid-300s which I thought was a good sign, six month test I'd dropped to high 200s, nine month test I'm in the low 200s.
I'm reaching the point where I'm starting to have some of the effects I had while on ADT and this is fueling unbelievable anxiety since I generally found the whole ADT experience to be extremely traumatic.
My pre-treatment T was in the 500s and now it's in the low 200s and falling. I, too, am thinking about going to an endocrinologist and not telling them of my PCA diagnosis either. But I am going to wait the full year to see what happens. My only fear is my cancer center will quickly figure out I'm doing this if my T jumps from the low 200s into the 500s and drop me.