no improvement with evenity

Posted by ingridbergman @ingridbergman, May 26 6:52pm

i have had 12 months of evenity to treat my OP without any improvement in my BMD. anyone else had this problem?

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windyshores | @windyshores | May 26 9:26pm

My bone markers would seem to show no effect on Evenity, but I just did two years of Tymlos. So sorry that you did 12 months with no results. I hope it at least prevented further loss.

ingridbergman | @ingridbergman | May 26 10:01pm

thank you for your reply.

my dexa scan showed no improvement or loss with evenity. i did not have bone markers.

windyshores | @windyshores | May 27 8:07am

In reply to @ingridbergman "thank you for your reply. my dexa scan showed no improvement or loss with evenity. i..." + (show)

@ingridbergman so it kept you from losing but didn't give you any gains. What will you do next? Do you think Evenity helped with bone quality if not density? I wonder what your doctor has to say on this.

rola | @rola | May 27 10:01am

Curious, were you on a drug prior to Evenity? Did you use the same facility for DEXA? Really sorry to hear this yet glad you didn't lose.

ingridbergman | @ingridbergman | May 27 3:40pm

i had full dose reclast after evenity. the dexa was at the same facility, but not the same machine. the endocrinologist felt i had the evenity too close to my last reclast with only a year between my previous reclast and the evenity. she thought that was the reason.

Michael Lavacot | @michaellavacot | May 27 6:26pm

Hi @ingridbergman - Following Reclast with Evenity will reduce the results for sure, but you still should have seem some benefit. Attached is a chart that shows some trial data.

My primary care doctor has not had good luck with Evenity and I'm not sure why. I also had poor results, but I contribute it to my hypercalciuria. You can't make bone if you are losing calcium faster than you can absorb it from your diet. Have you checked your 24 hour urine calcium? Also, you might want to get your 1,25(OH)2D measured just in case something whacky is going on there. Get your phosphorus checked as well. Disorders of low serum phosphorus can also be an issue. A few things for you to check out.