Connect
No improvement in Dexascan after 11 months on Evenity
I'm scanning these posts and can't find results like mine. I'm a 57 year old marathon runner who had parathyroid disease diagnosed and surgery removing 2.5 glands(could only find 3 glands)in 2019. By the time of that diagnosis, I had several stress fractures in my legs and arm over 10 years with blood Ca up to 10.6 (my internist missed this).
My endocrinologist waited to see my dexascan results for a year after my surgery before starting Evenity. I just got my last set of shots today but my dexascan yesterday showed no improvement in lumbar spine -2.9, or femur -2.3, TBS =1.264 and a loss in my arm now -2.9 (0.721 last year, 0.623 yesterday).
I see my endocrinologist at the end of the month for my next steps. This is not what I was expecting. I am very active and make concerted efforts daily to get miles of weight bearing exercise (either walking or running). I have always been healthy weight and a vegetarian who loves her dairy products.
I had no issues getting the Evenity. Had occasional swelling at the sites on my arms but not every month. I am shocked to see I had no response and wonder if there are others out there?
Thanks.
Like
Helpful
HugInterested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Connect
I am sorry to hear all you have been through. I am 46 years old and also a marathon runner. I was just getting ready to start training for a 50 miler, but on Friday got diagnosed with osteoporosis in my spine. Hips and femur seem to be ok at this point (woo hoo). Osteoporosis is awful for anyone at any age, 46 seems a bit early but hey. My question is did you keep running after learning you had osteoporosis? Running is really who I am but it is so high impact so worry a bit. I am supposed to see a specialist but am told it will take a year to get into one. Really don't want to wait a year to see if I should be running or not.
-
Like -
Helpful -
Hug
2 ReactionsI would consult with Dr. Kevin McCormick if you haven’t done so. He was an Olympic runner and has had osteoporosis. He might be able to help diagnose these issues.
-
Like -
Helpful -
Hug
2 ReactionsI am female, 86 years old. I have been diagnosed with GPPD. I am struggling with severe pain. I have circulation, joint issues (knees and hip) and scoliosis. I have tried many of the GPPD meds - all causing severe diarrhea. I do see a local rheumatologist but not getting much a advise other than the meds I can not take.
Advil (no w/acetaminophen) seems to be my best pain reliever. I am also starting a new low protein and w/certain grains and vegetables. I keep reading conflicting diet plans.
Thank you kindly for your advice. Sally Metzger