Connect
Newly diagnosed with RBD
I've just been diagnosed with RBD after falling out of bed 2x in a week. I've been punching and grabbing my poor husband in my sleep for years but never thought anything of it.
I'm obsessing about the potential for follow on neurological issues. Any memory issues and I think it's a sign. How do others deal with this?
Like
Helpful
HugInterested in more discussions like this? Go to the Sleep Health Support Group.
Connect
i feel so bad for you. are you going to be okay?
Thank you Ginny. I will be. It's just the not knowing. If I knew I would end up with PD, I'd understand my outlook better and be able to plan.
-
Like -
Helpful -
Hug
1 ReactionSome people write that they take a med that helps with RBD. Sorry, I do not know what it is, but it was mentioned in the forum somewhere.
-
Like -
Helpful -
Hug
1 Reactionthat is so true, I wish you the best of luck
I would suggest that you ask your sleep physician to refer you to a neurologist with expertise in Parkinsonisms or you should do some internet research and seek one out on your own. Mayo has many with this expertise. RBD is prodromal to at least three Parkinsonisms, including Parkinson's. It can be treated with either pharmaceuticals or melatonin and perhaps others. You can find relief, as I did, after dosing with 6 mg melatonin each night just before bedtime. Whether you use an immediate release or extended release version of melatonin is something your physician will determine and some experimentation may be required. If melatonin does not work, a drug may well do the trick. Beyond correcting the RBD, the neurologist will advise you regarding your course of action on the potential Parkinsonisms and what if anything to do now. Do not lose hope but my advice is for you get moving on it soon.
RBD?????? and PD????
Please seek medical attention from the larger teaching facilities that we have available either through self referral or have your physician refer you. The earlier the better. Well worth the expense and travel time to get exceptional medical help.