Newly diagnosed with ovarian cancer (OC) ~ looking for support

@irishgirl1313, such an encouraging first post. I look forward to learning more about you. Were you also diagnosed with ovarian cancer? What treatments have you had? How are you doing today?

Sorry to hear that you are going through this. I found that the situation became less stressful after there was a plan in place, and I just had to show up and do it.

Regarding the chest port, I had two rounds of chemo through veins in my arms before I had a port implanted (I was 57). That was one round too many. The first round went fine, but chemo messes up your veins, so during the second round, they kept trying to stick needles in different places to start with, and then moved the needle into different veins twice during the infusion. Ugh. Starting chemo ASAP is probably good, even without a port, but I would recommend getting a port before the second round.

@naturegirl5 Thank you for asking. I also perceive it as moving fast, so thank you for saying that. Fast, yet I want Friday to hurry up and get here. Anything that brings me closer to getting this cancer out of me. My Gyn/Onc called me again last evening, she had spoken to the Hematologist who was treating me prior for my blood clots. They both agreed that I should go back on Eliquis since clots are more common for cancer patients. So today, i started that again. I do not have a problem with it, but worry that I might bleed again. (I have been free from bleeding for about a week) . I also told her I would like to know the chemo she is thinking, and she told me, it is what I expected. I also asked about a port. She told me not to let that be a barrier, that I am young enough to just have regular IV if needed, in order to begin quickly. (I am not sure I mentioned, I am 53). Most days I am ok. I am still working, and feel relatively "normal". My sleep is not optimal, but not horrible. So my work is a great distraction. I also have a couple of friends that are helpful, and they are coming by thursday to help me organize my craft room. I told them I want order in at least one area of my life. So, overall, I would say I am doing well day to day. I like the Optimism with a plan concept. I have also been trying to replace worry with prayer. Every time a worry or negative thought comes to mind, I turn to prayer. I will lean on all of you. Thank you so much.

I can relate. I am battling cervical cancer at Mayo Rochester. I am a VP at a large company and only told the need to knows. It’s turned my world upside down. I am staying in Rochester during the week for treatments and home on the weekends. You’re not alone. I was in Menopause and the clinic kept telling me my bleeding was hormone related. When my gut told me to go in, it was cancer.

It’s such a difficult diagnosis to get - thoughts and prayers to you. You will experience a wide range of emotions throughout this journey, just remember that you are still you despite the changes you will go through. Wishing you all the best and lots of love and support.

@tbkomparda thank you for taking the time to reply to me. I am wondering about the support group you mentioned above. I am not finding it with that url. I would love to read some survivor stories for sure! I am doing my best to not google things. I am really doing my best to let my Provider guide me, and trusting in her. She used the words "Cureable" which I am not sure she should have, and in another call she said "I think we are on a great trajectory for you". So I am holding onto those things, but I also want to be realistic. I work with nurses (I am an IT professional) and one of them told me she worked with heart and lung transplant patients. She told me that the patients who remained positive with their outlook, had better outcomes. So I am also holding on to that.
Do let me know about the website. I found Cancercare.org support group, but I am thinking it might not be the correct one.
Do you mind telling me what stage you were when you were diagnosed? I love hearing you are 26 months out. Thank you again for your kindness.

@naturegirl5 Thank you for asking. I also perceive it as moving fast, so thank you for saying that. Fast, yet I want Friday to hurry up and get here. Anything that brings me closer to getting this cancer out of me. My Gyn/Onc called me again last evening, she had spoken to the Hematologist who was treating me prior for my blood clots. They both agreed that I should go back on Eliquis since clots are more common for cancer patients. So today, i started that again. I do not have a problem with it, but worry that I might bleed again. (I have been free from bleeding for about a week) . I also told her I would like to know the chemo she is thinking, and she told me, it is what I expected. I also asked about a port. She told me not to let that be a barrier, that I am young enough to just have regular IV if needed, in order to begin quickly. (I am not sure I mentioned, I am 53). Most days I am ok. I am still working, and feel relatively "normal". My sleep is not optimal, but not horrible. So my work is a great distraction. I also have a couple of friends that are helpful, and they are coming by thursday to help me organize my craft room. I told them I want order in at least one area of my life. So, overall, I would say I am doing well day to day. I like the Optimism with a plan concept. I have also been trying to replace worry with prayer. Every time a worry or negative thought comes to mind, I turn to prayer. I will lean on all of you. Thank you so much.

Hello,
As a OC survivor first off want to tell you that the ovariancancersupportgroup.com is excellent great support many survivor stories invaluable resource.

What your feeling right now is perfectly normal please do not over read Dr Google statics are outdated there are several different subtypes of OC you are not poisoned or a leper as a private person myself I completely understand OC is a shock but there have been so many new drugs that have come to market you are blessed to be at Mayo sounds like you have a great Gyno/Onc I am a 26 month survivor diagnosed 2021 my only symptom was constipation thank GOD my internist didn’t chalk it up to post-menopause sent me for a pelvic ultrasound.

Not a club anyone wanted to join but you are now a member of the Teal Sisterhood I would be happy to answer any questions you may have or any of my other sisters on the above mentioned website.