Newly diagnosed with lung cancer. Never smoked. In shock....

Posted by aksinspringfield @aksinspringfield, May 29, 2022

hi all. my name is Amy. i am 56, non smoker, former triathlete, eat healthy.. etc..
had a high heart rate working out starting over a year ago. ignored it, as i thought i was just not in normal shape and i had reduced hard workouts because of hip pain. I developed a cough about 4 months ago. finally got a chest xray in late April... fast forward to now. stage 4.

first, i had no idea there was a "non smokers" lung cancer and that is could present with little or general symptoms.

i appreciate all of the advice on here about being patient- waiting is the worst! i have an A team of docs that i trust but they encouraged a second opinion, which isnt scheduled for 4 weeks.

any ideas on how to best prepare my body for chemo/immuno treatments? i am still working out and still eat pretty healthy. are there supplements , etc?

thank you
Amy

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@dedehans

I am not sure if this has been asked here....Did the surgeon take a sample of your tumor for pathology testing? To identify it's genetic make up? As you are stage IV you should qualify for a targeted therapy if you have the right markers. The medicine will only go after the genetic material that is left and keep it in check. Sorry if this question already answered....

Me and my theraputic Margarita during the tough summer of 16.

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Dee
They did take samples and sent them away for testing
Hopefully i get results this week!
The margarita looks fabulous!!
🙂
Amy

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@merpreb

Dee- This looks delicious but any alcohol drinking during cancer treatments should be checked with your oncologist. I do have to confess that way back when I had chemo (there were no directed treatments at that time) I had a glass of wine at night. But as I got further into chemo I could only take a few sips. I don't think that wine would be my forte right now though.

Merry

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As with anything relating to what one should or shouldn't do with cancer diagnosis and treatment one must check with one's doctor first.

I was in the middle of biopsies, bronchospies CT scans, MRIs etc when I would get together with friends and have this lovely Margie. I was in the waiting game and this helped me stay positive and retain my sense of humor. BTW, this was too big for 90 lb me to finish but luckily one of my pals was right there to finish it off. 😀

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@dedehans

I am not sure if this has been asked here....Did the surgeon take a sample of your tumor for pathology testing? To identify it's genetic make up? As you are stage IV you should qualify for a targeted therapy if you have the right markers. The medicine will only go after the genetic material that is left and keep it in check. Sorry if this question already answered....

Me and my theraputic Margarita during the tough summer of 16.

Jump to this post

Dee- This looks delicious but any alcohol drinking during cancer treatments should be checked with your oncologist. I do have to confess that way back when I had chemo (there were no directed treatments at that time) I had a glass of wine at night. But as I got further into chemo I could only take a few sips. I don't think that wine would be my forte right now though.

Merry

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@aksinspringfield

Hi all
Update- i had left lower lobe removed with VATS last week. It happened fast- docs were going to do chemo first but abruptly reversed course on friday and set me for a monday surgery.
It went well- they got out the tumor with clean margins!
It was bigger than a softball- unbelievable.
Now on to chemo…

Jump to this post

I am not sure if this has been asked here....Did the surgeon take a sample of your tumor for pathology testing? To identify it's genetic make up? As you are stage IV you should qualify for a targeted therapy if you have the right markers. The medicine will only go after the genetic material that is left and keep it in check. Sorry if this question already answered....

Me and my theraputic Margarita during the tough summer of 16.

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@oldkarl

Great job, for both you and the doctors to recognize the problem and deal with it. I had a melanoma on my spine, and the doc said "Oh, just ignore it. It will go away on its own." He was right. So I took my whole body, including that melanoma, and went to another oncologist. He said the first doctor was correct. This would go away on it's own when I die. oldkarl

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KARL!

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@aksinspringfield

Hi all
Update- i had left lower lobe removed with VATS last week. It happened fast- docs were going to do chemo first but abruptly reversed course on friday and set me for a monday surgery.
It went well- they got out the tumor with clean margins!
It was bigger than a softball- unbelievable.
Now on to chemo…

Jump to this post

Great job, for both you and the doctors to recognize the problem and deal with it. I had a melanoma on my spine, and the doc said "Oh, just ignore it. It will go away on its own." He was right. So I took my whole body, including that melanoma, and went to another oncologist. He said the first doctor was correct. This would go away on it's own when I die. oldkarl

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@lls8000

Wishing you an uneventful recovery! Yes, they removed your lower lobe, but look at all you’ve been doing while growing a softball in your lung!? Endure through the chemo, and you’ll hopefully bounce back from this ok. Hugs, take care.

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Thank you! Keeping the faith!

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@aksinspringfield

Hi all
Update- i had left lower lobe removed with VATS last week. It happened fast- docs were going to do chemo first but abruptly reversed course on friday and set me for a monday surgery.
It went well- they got out the tumor with clean margins!
It was bigger than a softball- unbelievable.
Now on to chemo…

Jump to this post

Wishing you an uneventful recovery! Yes, they removed your lower lobe, but look at all you’ve been doing while growing a softball in your lung!? Endure through the chemo, and you’ll hopefully bounce back from this ok. Hugs, take care.

REPLY

Hi all
Update- i had left lower lobe removed with VATS last week. It happened fast- docs were going to do chemo first but abruptly reversed course on friday and set me for a monday surgery.
It went well- they got out the tumor with clean margins!
It was bigger than a softball- unbelievable.
Now on to chemo…

REPLY
@corgimenow

That is so nice of you! We are waiting for our call in time to know when we go in.
We have had so many calls and messages from family and friends. So grateful for technology and being connected to loved ones. Also for this amazing place.

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Best of luck!

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